The network of Spina Bifida organization across the country are hosting two book clubs: One for adults living with spina bifida and one for family/caregivers of someone living with spina bifida.   Book clubs will take place via Zoom every other month on Thursday evenings at 4:30pm PDT/7:30pm EDT   Adults: January 12: Golem Girl by Reva […]

Join us virtually every fourth Thursday of the month at 7:30pm for our Parent-to-Parent chat.  This group is designed for parents of children with Spina Bifida. CLICK HERE to join

Sign up here to join The Wellness Initiative is a national program providing wellness opportuntiies for people living with Spina Bifida and their family members to help reach their goals and form healthy habits. Each quarter we will provide education, programs, and networking opportunities focused on one area of health. Participation is free and open […]

NH and MA residents only, between 9/11 and 10/14 purchase a raffle ticket for a chance to win the 50/50 and also support SBAGNE! Buy your tickets HERE

ADVOCACY BOOT CAMP (ABC) PROGRAM ABC is a virtual crash course in community organizing, systems and legislative advocacy, campaign development, networking, public speaking, and serving on boards and committees. ABC will be delivered virtually between September and November.  This is a great chance to harness your power of advocacy in the disability community. Dates: Monday […]

  Come meet other SBAGNE members and enjoy a day at the racetrack!  We will meet Torsten Gross and James Cooper of Just Hands Racing Foundation, https://justhands.org/, learn about adaptive race car driving, and check out their adaptive cars.  Lunch will be provided by SBAGNE 9/29/23 10-4pm Location Register HERE

Please join us to meet your neighbors at the Jack-O-Lantern Spectacular at Roger Williams Park Zoo! Details: Saturday, October 7, 2023 Event Details:  https://www.rwpzoo.org/jols/ Time:  5:30 pm arrival; 6:00 pm entrance Registration Deadline:  Monday, September 25, 2023 Cost:  Free of charge; tickets will be purchased by SBAGNE Directions:  Roger Williams Park Zoo, 1000 Elmwood Ave., […]

The Spina Bifida Association of New York State (SBANYS) and Spina Bifida Association of Greater New England (SBAGNE) have partnered together for the 3rd year in a row to offer a virtual adaptive fashion show. Featuring 24 models and 13 brands, our show will premiere on World Spina Bifida Day! If you require any accommodations, […]