The SBAGNE Snowflake Network

SBAGNE is pleased to announce the development of the SBAGNE Snowflake Network.  Our goal is to be able to provide an uplifting care package for our members who are undergoing a procedure or recovery.  We will develop a request form for friends and family to complete. First, though, we need the support of the community […]

Connect with SB Families at The Guild!

Come and meet your neighbors, have some food and fun, and raise awareness for Spina Bifida! Registration not required, no fee to attend!

SBAGNE Splashpad Playdate!

Newmarket Recreation, 1 Terrace Drive, Newmarket, NH 03857

Join us for some fun in the sun!  Meet other families and enjoy a great outing with your kiddos! Date: Saturday, June 21st Time: 10- 12pm Location: Newmarket Recreation, 1 Terrace Drive, Newmarket, NH 03857 Cost:  Free!!! Registration Deadline:  Friday, June 13, 2025 Register Here

A Day at the Races!

Join us for a Day at the Races with Just Hands Racing Foundation! Come and learn about adaptive cars and racing, connect with the community, and share a picnic lunch provided by SBAGNE. There are limited Ride-Along opportunities available on a first-come, first-served basis to anyone 18+.  Registration for the Ride-Along can be found at […]

SBAGNE Playdate – Waltham!

Join us for some fun and friendship at a brand new, fully adaptive playground!   Date: September 20, 2025 Time:  10 am - 12 pm Location:  Eunice Shriver Kennedy Memorial Grounds, 200 Trapelo Road, Waltham, MA Cost:  Free! Registration Deadline:  September 12, 2025 Register HERE  

SBAGNE Family Camp Weekend

SBAGNE Family Camp Weekend For kiddos with SB, grades K - 5, siblings and parents.  Space available for 8 families, first-come, first served. Dates:  October 3 - 5, 2025 Location:  Dream Day Camp, Brewster, MA Cost:  $75 registration fee/family (waiver available).  Cost includes all lodging, food, and activities Registration Deadline:  September 19, 2025 Register HERE

Double H Ranch Family Camp Weekend

Double H Ranch Neuromuscular Family Camp Weekend Open to all SB kiddos, ages 5 - 21, siblings and parents. Dates:  October 24 - 26 Location:  Double H Ranch, 97 Hidden Valley Road, Lake Luzerne, NY12846 Cost:  Free! Registration Required on Double H site HERE