Terms of Use

The Spina Bifida Association of Greater New England (“SBAGNE”) is a regional non-profit organization that serves adults and children who live with the challenges of Spina Bifida. We welcome the residents of the region we serve to visit and use this site in accordance with the terms and conditions delineated below, as well as all applicable United States laws and regulations. This site and its contents are intended for access and use solely by the residents of the region we serve. Please read these terms with care because this is a legally binding agreement between you and SBAGNE, the owner and operator of this website.


The SBAGNE website is made available for your personal, non-commercial use only. The materials on this site are the property of SBAGNE, its licensors, or contributors of User Submissions (as defined below) and are protected by U.S. copyright laws, other copyright laws, and international conventions. Except as explicitly provided in this Agreement, you may not distribute, transmit, display, reproduce, modify, create derivative works from, or otherwise exploit any of the materials on this site. You may display and print a single copy of any page or illustration on the site for your personal, non-commercial use, but you may not otherwise reproduce any material appearing on this site without the prior written consent of the owner. You may not store any significant portion of, nor distribute copies of, materials found on this site, in any form (including electronic form), without prior written permission from the owner. You may contact us using our “Contact Us” link on the website to request permission to reproduce or distribute materials found on www.SBAGreaterNE.org.

The trademarks, Spina Bifida Association of Greater New England, and our logo on this site are the property of, licensed to, promoted or distributed by SBAGNE.

The content of this site is subject to copyright protection.

Copyright © Spina Bifida Association of Greater New England.

All rights reserved. Unauthorized use prohibited. SBAGNE has a copyright in all proprietary and copyrightable text, graphics and computer code on this web site, the overall design of this site, and the selection, arrangement and presentation of all materials on this site, including information in the public domain. SBAGNE encourages the dissemination of its copyright materials for educational purposes only. No for-profit use by others is authorized unless approved by the SBAGNE in writing. Nothing contained in the Terms of Use shall be construed as conferring any license or right under any SBAGNE copyright.

Linking Policy
You are free to establish a hypertext link to this site so long as the link does not state or imply any endorsement or sponsorship of you, your company, or your site by SBAGNE. However, without the prior written permission of SBAGNE, you may not frame any of the content on the site nor incorporate into another website or other service any intellectual property of SBAGNE.

  • Links To SBAGNE’s Website. SBAGNE encourages other websites to link to this site, provided that these links comply with the guidelines set forth herein. Links to this site from other sites should be text-only and may not include SBAGNE’s logo. We strictly prohibit any suggestions of SBAGNE endorsement or recommendation of a specific company, product, or service. Although SBAGNE supports broad educational efforts regarding Spina Bifida, we do not permit other sites to copy and reuse information from this site other than for educational purposes.
  • Links from SBAGNE’s Website. This site may include links to other sites. These links are provided solely for purposes of convenience. SBAGNE is not responsible for the content or accuracy of information contained on other sites or other sites’ privacy practices. SBAGNE is not liable for any damages or injury arising from content contained on other sites. Links to third-party sites are not a referral or endorsement of any other entity, item, or service. You release SBAGNE and its affiliates from any damages that you may incur, and agree not to assert any claims against them, arising from your purchase or use of third-party supplied information, products and services.

The information on this web site is not intended to be, nor is it, medical advice on the management or care of a person with Spina Bifida. Our goal is to provide information that is helpful, accurate, and current, but knowledge in the field of Spina Bifida is growing rapidly and all data are subject to change without notice. Neither SBAGNE nor any parties who supply information to this system make any warranty concerning the accuracy of any information found on or exchanged through this system. No endorsements of any products which appear on this web site are given or implied by SBAGNE.

SBAGNE does not endorse any specific medical regime. You should not change your medical schedules or activities based on the information provided at this site. Always consult with a doctor, healthcare provider, or other medical professional before making any medical decisions. Please note that SBAGNE does not employ medical personnel in their regional office. If you have a specific medical question regarding Spina Bifida please contact a Spina Bifida clinic or your physician.

The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our disclaimer.

Your use of this web site is at your own risk. By navigating this web site, you waive any and all claims relating to the usage of material or information supplied by SBAGNE. SBAGNE and parties involved in developing, producing, or delivering this site shall not be liable for any damage or injury of any kind arising from your access to, use of, or inability to access or use this site. SBAGNE and the aforementioned parties also shall not be liable for any damage or injury resulting from any omissions or errors in the content of this site or from your reliance on information obtained from this site. If you rely on this website or any information, product or service available through this website, you do so at your own risk. You understand that there may be delays, omissions, interruptions, inaccuracies, and/or other problems with the information, products, and services published on or promoted over this site. This website is provided to you “as is.” SBAGNE, its affiliates, agents, vendors and licensors cannot and do not warrant the accuracy, reliability, completeness, currentness, non-infringement, merchantability or fitness for a particular purpose of the advice, opinions, statements or other information available through this website (or any information, goods or services that are referred to, advertised or promoted on, or sold through this website). SBAGNE, its affiliates, agents, vendors and licensors do not guarantee that the website will be error free, or continuously available, or that the website will be free of viruses or other harmful components.
Under no circumstances will SBAGNE or its affiliates, agents, vendors or licensors be liable to you or anyone else for any damages other than direct damages, arising out of your use of this website or any product or service linked to from or advertised or promoted on this website, including, without limitation, consequential, special, incidental, indirect, punitive, exemplary, or other damages of any kind (including lost revenues or profits, loss of business or loss of data), even if we are advised beforehand of the possibility of such damages. You hereby acknowledge that use of this website is at your sole risk. Because some states/jurisdictions do not allow the exclusion or limitation of liability for consequential or incidental damages, some of these limitations may not apply to you. You agree to indemnify and hold harmless SBAGNE, its affiliates, agents, vendors and licensors, and their respective employees, owners and representatives against any and all claims, of whatever nature, that arise out of any breach by you of this agreement or your use of this website.

This site is intended for access and use solely by residents of the United States and subject to all applicable laws of the United States, and in particular, the state of Massachusetts. Use of this site implies and is subject to the consent to the laws of the United States and the jurisdiction of the courts of the Commonwealth of Massachusetts.

SBAGNE reserves the right to alter or delete material from this site at any time without notice. Please check often for updates, as we reserve the right, in our sole discretion, to modify these Terms of Use at any time, and your use of the site indicates your acceptance of any revisions to these terms.

Visitors must contact SBAGNE to resolve any disputes that arise from use of this site.