Privacy Policy

Thank you for visiting The Spina Bifida Association of Greater New England (“SBAGNE”) respects the privacy of online visitors and donors. This Privacy Policy explains our collection and treatment of any personal information you may provide to us through this site.

Collection of Personal Information
You may visit this site without providing us with any personally identifiable information. You may choose to submit personally identifiable information in certain circumstances, such as when you join the mailing lists for SBAGNE newsletters and other mailings; purchase an item online from SBAGNE; make an online contribution to SBAGNE; or register for access to certain pages on this site. In these instances, we may ask you to provide information, including your name, address, and other similar contact information.

We may also ask you to create a username and password to access certain restricted pages on this site. Where we ask for personally identifiable information on this site, we may not be able to process your request or provide you with access to restricted pages if you decide to withhold any of the information we request.

Personal Information From Children
We do not knowingly collect, disclose or use personally identifiable information provided by a minor under the age of 13. If you learn that your child has provided personally identifiably information to SBAGNE, please contact us and we shall remove that information from our lists.

Use of Personal Information
We may provide your personally identifiable information to other SBA chapters throughout the United States and to contracted vendors that assist SBAGNE with mailings and online sales transactions.

SBAGNE does not sell or otherwise share with organizations who are not our partners any of the personally identifiable information received on this site. SBAGNE may use personally identifiable information for SBAGNE-specific direct mailings, such as email updates, newsletters, and solicitation and advocacy letters, and we may share your information with organizations and companies that partner with it to provide information, products, and services that we believe are of real value to the community we serve. If you do not wish for us to share your information with our partners, please let us know by contacting us at the email address below, and we will gladly respect your decision to “opt-out” of receiving communications from SBAGNE and/or its partners.

SBAGNE may also share with third-parties aggregate information regarding online visitors. Aggregate information identifies overall visitor activity, but does not provide information on any individual user.

Internet Information Security
We take reasonable precautions to ensure that any personally identifiable information you provide on this site is kept confidential and stored in a secure environment, and that only those personnel with legitimate business purposes will have access to this information. Even so, we cannot guarantee that data provided to us will not be subject to loss, alteration, misuse, unauthorized access, disclosure, or destruction. It is important to be aware that all internet transmissions are subject to security breaches and errors. You should take precautions in choosing the information you send to SBAGNE via email and safeguard any passwords or special types of identification you use to access this site.

International Notice
Personal information that is voluntarily submitted to SBAGNE online, via electronic communication, or otherwise, such as through email mailing lists, may be maintained or accessed in servers or files located in the United States under United States privacy laws, which the European Union has not deemed to provide “adequate” privacy protection. If you do not consent to having your information processed and stored in the United States, please do not provide it.

A cookie is a piece of data that a website may transmit to your browser. The cookie may be stored on your computer to identify your computer when you return to the site, but does not identify you as an individual user. SBAGNE may use “session only” cookies to track your use of this site that do not retain your personal information.

Changes to Your Personal Information.
We strive to ensure the accuracy of any personal information you provide to us online. If you would like to update or review the personal information we have on file for you, please email your request to Laura Lambert. To assist us in properly updating our files, please include your old and new personal information in your request.

Effective Date
This Privacy Policy was last updated on January 10, 2013. SBAGNE reserves the right to change or modify this policy as needed. Your continued use of this site signifies your assent to any modifications of this Privacy Policy. By visiting this site, you indicate your assent to SBAGNE’s Privacy Policy. If you have any questions regarding this Privacy Policy, please contact SBAGNE directly.