Newly Diagnosed?

It’s going to be OK – you are not alone!

If you are an expectant parent who has been told that your pregnancy is affected by Spina Bifida, we can help you find resources or connect you to people who can share their experience and expertise.

If you are a parent of a young child or an adult who has just been diagnosed with Spina Bifida, we have information and resources available for you.

We know that you are searching for information to help you understand more about your unanticipated diagnosis, and we want you to start in the right place.

National Resource Center (Spina Bifida Association)

Our national resource center is a hotline where you can ask questions and get referrals for yourself, your child, or to prepare for your baby’s arrival.

Guidelines:  https://www.spinabifidaassociation.org/guidelines
App: https://www.spinabifidaassociation.org/mobile-application

Spina Bifida Clinics and Providers

A list of providers and clinics in each state is provided. If you don’t find the information you need here, call the national resource center or your local office.

Greater New England

If you live in Greater New England, we are here as an affiliated chapter of the Spina Bifida Association to serve you. If you live in a surrounding state, there might be a chapter closer to you that we can help you locate. We can also connect you to families in New England who have shared your experience. We are here to help and invite you to contact us by emailing or calling.