Welcome to the Spina Bifida Association of Greater New England
We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.
Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.
At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. ...
"The Spina Bifida Report" is now on-the-air and being heard all around the world!To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. "The Spina Bifida Report" is now on everyone's mobile devices (iPhones ...
Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...
ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...
Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound? Or maybe you've used duct tape to open a jam jar? If you have done either of these things (or a slew of other tricks) then you've made use of a life ...
REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts.
You can search the inventory here.
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Who: SB kiddos, ages 7-10, their siblings and their parents
When: Saturday, October 24, 2020, 10 am – 12 pm
Where: Your Computer!
Why: Fun, interactive games and family connections!
Cost: $0
Please join us for an engaging episode of family fun, facilitated by the Browne Center staff. Parents will enjoy a separate Coffee and Conversation opportunity, while our SB kiddos and their siblings have a blast working in teams to solve puzzles, play games, build connections. We hope you can join us!
Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.
The 2020 New Balance Falmouth Road Race has officially gone virtual! We invite you to join Team Spina Bifida to run the New Balance Falmouth Road Race “At-Home Edition” beginning on August 15th and ending on August 29th.
This year’s race will look different from past years, with participants running in their own homes and neighborhoods, but it continues to be an amazing opportunity to raise awareness and connect with others through virtual and socially distant means.
SBAGNE has been part of this event for many years and the race is a vital aspect of our fundraising and awareness. In light of the coronavirus pandemic, our ability to support the spina bifida community in New England is more important than ever. We hope you agree.
We invite you to participate in a week of virtual programming and activities for you and all your friends!
After great consideration, we have decided to combine our annual northern and southern Walk-N-Rolls and Summer Picnics into a 4-day virtual event open to all our members across New England.
This decision comes with a desire to do our part to maintain social distance while still supporting the social well-being of all of our members across New England.
Join us each day for virtual activities and resources!
July 15th
July 16th
July 17th
July 18th
Join us for activities and resources from the great states of Maine and Vermont!
Join us to celebrate the SBAGNE community in New Hampshire and Connecticut!
Participate virtually in adaptive athletics from Massachusetts and Rhode Island!
Tune in to our Awards Ceremony, hear from Jean Driscoll, and win prizes!
This new event takes the place of both our Massachusetts Walk-N-Roll and Summer Picnic (previously scheduled for June 20th) and our Maine Walk-N-Roll and Summer Picnic (previously scheduled for August 8th).
Fund-raise for the Walk-N-Roll on our GoFundMe Charity Campaign Page now through July 18th and participate in our virtual picnic activities, connect with resources and more on our Facebook Event Page July 15-18.
Show your state pride by posting photos and videos of your talents, hobbies, or favorite quarantine activities to the Facebook Event Page on your state’s day. Some suggestions include:
music, comedy, or dancing
cooking, gardening, or handicrafts
tricks, wheelies, or yo-yo skills
skits or anything else you’re good at or just love doing
Participate in virtual adaptive workouts and a virtual visit to Pineland Farms
Meet our sponsors and hear from local resources and ask them your questions
Hear from pro-athletes, Jean Driscoll and Daniel Romanchuk
Compete for prizes! Post photos or video of your entries on your state’s day to our Facebook Event Page and vote for your favorites by hitting the “LIKE” button Compete for:
Best-dressed (costumes, party clothes, whatever makes you smile)
Best picnic decorations (decorate your living room, backyard, adaptive equipment)
Most creative sandwich
Best picnic dessert (go for most creative, most beautiful)
Best “mocktail”
AND join us on Friday, July 17th at 7pm for an “All New England Video Chat” on our Facebook Messenger Room!
Fund-Raise with us on GoFundMe Charity
Set up your team or join an existing team to participate in our annual Walk-N-Roll fundraising by visiting our GoFundMe Charity Campaign Page and clicking “JOIN.”
The annual Walk-N-Roll is a way for the community to support SBAGNE’s efforts to bring meaningful programming to people of all ages living with spina bifida and their families.
The annual Walk-N-Roll is a way for the community to support SBAGNE’s efforts to bring meaningful programming to people of all ages living with spina bifida and their families.
Fund-Raising Milestones & Incentives
Fundraising can be fun, empowering, and competitive. Just check out these milestones and the gifts that accompany them.
Just for joining, we’ll send you a Cloth Face Mask so you can wear your spina bifida pride while keeping yourself and others safe!
Raise $100 to earn 2020 Walk-N-Roll t-shirts for you and your team and you will support our outreach to hospitals and clinics.
Raise $250 to earn a set of classy Slate Coasters and your efforts will underwrite one Empowerment Program Benefit.
Raise $500 to earn a Wireless Charging Pad and you will contribute to the cost of an annual Adult Group outing.
Raise $1,000 to earn a beautiful Cheese Board Set and underwrite a parent and teen to attend BEST Meets BLING.
Raise $2,500 to earn a BBQ Utensil Set and your fund-raising will underwrite a Summer Picnic.
Raise $5,000 to earn a Picnic Backpack for Two and cover the costs of our annual Holiday Parties.
At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. Please check this list frequently, and reach out to us directly if you need assistance. We are here for you. Together, we are #sbstrong.
“The Spina Bifida Report” is now on-the-air and being heard all around the world!
To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it.
“The Spina Bifida Report” is now on everyone’s mobile devices (iPhones and Androids) and can be heard on all of the major podcast platforms, including Google Podcasts, Apple Podcasts, Spotify and iHeart Radio.
You can find the show by typing “Abilities Radio” into any of the search boxes on the podcast platform of your choice. You can also access the links by going to www.AbilitiesRadio.com.
Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.
Watch for our upcoming Adult Group Activities here.
Connect with Us!
Donate to or Join SBAGNE
Donate through Paypal
Thank you to Our Sponsors!
Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.
Connect with Us!