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Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

2020 BLING/BEST Weekend Registration Now Open!

2020 BLING/BEST Weekend RegistrationBLING/BEST is a weekend away for girls and boyes age 11-18 living with Spina Bifida (and a parent) filled with games, activities, sports, education, health conversations, social connections and fun. To register, you must live in New England and be a member of SBAGNE.Registration is open for ...

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The Spina Bifida Report

"The Spina Bifida Report" is now on-the-air and being heard all around the world!To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. "The Spina Bifida Report" is now on everyone's mobile devices (iPhones ...

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2019 Annual Appeal Underway

The 2019 SBAGNE Annual Appeal is underway!October is Spina Bifida Awareness Month, and the kickoff to our Annual Appeal Campaign.  With your generous support, SBAGNE can continue to expand and improve our outreach, programming, and financial support to families and individuals across New England living with Spina Bifida.  Our vision ...

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Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...

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ABLE Account

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...

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Barrier Free Playgrounds

Looking for a barrier-free playground in Massachusetts? Look no further. Check out the listing here. Updated regularly.

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Life Hacks

Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound?  Or maybe you've used duct tape to open a jam jar?  If you have done either of these things (or a slew of other tricks) then you've made use of a life ...

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REquipment - Durable Medical Equipment

REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts. You can search the inventory here. The latest news can be read online.

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2020 BLING/BEST Weekend Registration Now Open!

2020 BLING/BEST Weekend Registration

BLING/BEST is a weekend away for girls and boyes age 11-18 living with Spina Bifida (and a parent) filled with games, activities, sports, education, health conversations, social connections and fun. To register, you must live in New England and be a member of SBAGNE.

Registration is open for the annual BLING/BEST Weekend! The event is scheduled for March 6-8 at the Marriott Hotel in Newton, MA. Our combined BLING/BEST programming offers an empowering and exciting experience for both girls and boys. Register below and don’t forget to also update your membership records

Please contact Jean Bertschmann at JBertschmann@SBAGreaterNE.org, or 888.479.1900 with any questions or if you would like to volunteer during the event.

When: March 6-8, 2020

Where: Boston Marriot Hotel, Newton, MA

Cost: $50.00 per parent / child duo

SBAGNE is committed to making sure everyone can attend BLING/BEST who wants to, regardless of financial ability (as space allows). If you have difficulty paying our $50 registration fee or can only make a partial payment at this time, please choose the appropriate link below and contact SBAGNE to make arrangements.

Register now for the 2020 BLING/BEST Weekend (with payment)

Register now for the 2020 BLING/BEST Weekend (to make arrangements)

The Spina Bifida Report

“The Spina Bifida Report” is now on-the-air and being heard all around the world!

To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. 

“The Spina Bifida Report” is now on everyone’s mobile devices (iPhones and Androids) and can be heard on all of the major podcast platforms, including Google Podcasts, Apple Podcasts, Spotify and iHeart Radio

You can find the show by typing “Abilities Radio” into any of the search boxes on the podcast platform of your choice. You can also access the links by going to www.AbilitiesRadio.com.

2019 Annual Appeal Underway

The 2019 SBAGNE Annual Appeal is underway!

October is Spina Bifida Awareness Month, and the kickoff to our Annual Appeal Campaign.  With your generous support, SBAGNE can continue to expand and improve our outreach, programming, and financial support to families and individuals across New England living with Spina Bifida.  Our vision is to build connections and community, break down barriers, promote access and change within society, provide education, and support individuals as they move toward fulfilling and independent lives. 

 

Please be generous and contribute today online. Thank you for your support!

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that  we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.

Boston College Vs. Virginia Tech Basketball
Saturday, January 25, 2020, 1:30PM meeting time and 2:00PM tip-off
Conte Forum,140 Commonwealth Ave, Chestnut Hill, MA 02467

Boston College Vs. Merrimack Hockey
Saturday, February 15, 2020, 4:00PM meeting time and 4:30PM puck drop
Conte Forum, 140 Commonwealth Ave, Chestnut Hill, MA 02467

Donate Today!
Join Now

Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Watch for new opportunities!

SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900