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Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

Save the Date! BLING Meets BEST Weekend 2020

BLING Meets BEST is a two night, three day event for teens and tweens ages 12-17 living with spina bifida and a parent. This exciting weekend brings youth together for educational seminars, prom makeovers, sports and recreation, self-esteem workshops, friendship, camaraderie, and lots of other fun! Registration information to come ...

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2019 Annual Appeal Underway

The 2019 SBAGNE Annual Appeal is underway!October is Spina Bifida Awareness Month, and the kickoff to our Annual Appeal Campaign.  With your generous support, SBAGNE can continue to expand and improve our outreach, programming, and financial support to families and individuals across New England living with Spina Bifida.  Our vision ...

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Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...

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ABLE Account

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...

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Barrier Free Playgrounds

Looking for a barrier-free playground in Massachusetts? Look no further. Check out the listing here. Updated regularly.

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Life Hacks

Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound?  Or maybe you've used duct tape to open a jam jar?  If you have done either of these things (or a slew of other tricks) then you've made use of a life ...

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REquipment - Durable Medical Equipment

REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts. You can search the inventory here. The latest news can be read online.

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Save the Date! BLING Meets BEST Weekend 2020

BLING Meets BEST is a two night, three day event for teens and tweens ages 12-17 living with spina bifida and a parent. This exciting weekend brings youth together for educational seminars, prom makeovers, sports and recreation, self-esteem workshops, friendship, camaraderie, and lots of other fun! Registration information to come soon.

SBAGNE thanks the Constance O. Putnam and the Joy in Childhood Foundations for supporting BEST Meets BLING 2020.

Holiday Parties are Coming!

Join us for our annual holiday parties in Maine and Massachusetts!

We look forward to celebrating the holidays with you this December! Join us for lunch, new member welcome, meet Santa, exchange gifts in our Yankee Swap, and party with new and old friends!

 

Maine Holiday Party

Saturday, December 07, 2019*
11:00AM – 3:00PM

Saint Philip Church
2365 Turner Road
Auburn, ME 04210

*A snow date is scheduled for January 11, 2020.
Google Map

 

Massachusetts Holiday Party

Sunday, December 08, 2019
11:00AM – 3:00PM

Weston Community Center
20 Alphabet Lane
Weston, MA 02493
Google Map

 

Gifts will be provided for all children ages 13 and under. Everyone ages 14 and up are invited to participate in our Yankee Swap. SBAGNE will provide gifts for any members with spina bifida who participate in the swap. We invite all others who participate to bring a wrapped gift with them as entry to the swap.

 

Thank you to Milford Federal Bank for sponsoring our annual Holiday Parties and for being a Friend of SBAGNE!

2019 Annual Appeal Underway

The 2019 SBAGNE Annual Appeal is underway!

October is Spina Bifida Awareness Month, and the kickoff to our Annual Appeal Campaign.  With your generous support, SBAGNE can continue to expand and improve our outreach, programming, and financial support to families and individuals across New England living with Spina Bifida.  Our vision is to build connections and community, break down barriers, promote access and change within society, provide education, and support individuals as they move toward fulfilling and independent lives. 

 

Please be generous and contribute today online. Thank you for your support!

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that  we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.

Boston Common Tree Lighting and Dinner at Rock Bottom
Thursday, December 05, 2019, 7:00PM-10:00PM
Frog Pond, Boston Common, 139 Tremont Street, Boston, MA 02108

Boston College Vs. Virginia Tech Basketball
Saturday, January 25, 2020, 1:30PM meeting time and 2:00PM tip-off
Conte Forum,140 Commonwealth Ave, Chestnut Hill, MA 02467

Boston College Vs. Merrimack Hockey
Saturday, February 15, 2020, 4:00PM meeting time and 4:30PM puck drop
Conte Forum, 140 Commonwealth Ave, Chestnut Hill, MA 02467

Donate Today!
Join Now

Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Watch for new opportunities!

SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900