Welcome to the Spina Bifida Association of Greater New England
We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.
Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.
Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...
At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. ...
"The Spina Bifida Report" is now on-the-air and being heard all around the world!To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. "The Spina Bifida Report" is now on everyone's mobile devices (iPhones ...
ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...
Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound? Or maybe you've used duct tape to open a jam jar? If you have done either of these things (or a slew of other tricks) then you've made use of a life ...
REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts.
You can search the inventory here.
The latest news can be read online.
The Spina Bifida Association of Greater New England is seeking applicants to the Board of Directors. We seek to develop a diverse board with a wide range of skills, backgrounds, experiences, and expertise that will support and serve our membership all across New England.
Ideal candidates will have the following qualifications:
An understanding of and commitment to the spina bifida community.
Strong interpersonal skills and personal qualities such as integrity, drive, and flexibility.
One or more related functional skills such as marketing, public relations, financial development, health care expertise, organizational development, strategic planning and grant writing.
If you think you have something to offer, we invite you to apply. You can download the application materials by clicking the “Download Document” button above. Please send your application to Jean Bertschmann at jbertschmann@sbagreaterne.org. The deadline to apply is Friday, November 6th at 5PM.
Starting TODAY, you can give without spending with Express Feedback for Good! This program allows people to support a cause they’re passionate about by sharing their opinions on companies and brands. You can use your voice to create real impact for SBAGNE. Funds raised will be used to support our virtual Holiday Party and other critical programming.
How does Express Feedback™ for Good work? Sign up in about a minute by visiting https://hundredxinc.com/efg-spinabifida and select “Greater New England” from the drop box when asked which spina bifida organization you would like to support. Then, pick a company from 1,500+ options and share your opinion in 60-seconds. Each quality opinion you share creates $2 to support SBAGNE.
Share up to 75 opinions and create $150. It’s that easy! Go to https://hundredxinc.com/efg-spinabifida to get started TODAY. This program ends on October 27th, so we encourage you to act quickly to give without spending!
Express Feedback for Good™ is committed to respecting and protecting your information. Your contact information is not sold to 3rd parties. During the 30-day campaign, you’ll simply be asked to share opinions you have on companies and brands using an emoji-based, 60-second process.
Express Feedback for Good™ is totally free! Sharing honest feedback on companies and brands you interact with every day creates funds to help SBAGNE. When you choose Express Feedback, personal information you submit is encrypted and remains confidential. You will NOT be marketed to, asked to buy a product, or contacted without your permission.
In lieu of our Regional Conference, SBAGNE is pleased to present a Speaker Series for Spina Bifida Awareness Month. Recordings will be released on he following schedule, and links will be updated on the website commensurately.
Dr. Mary Dubon, Boston Children’s Hospital Physical Activity and Sports Participation for Yourth with Spina Bifida. Release Date: Thursday, October 1, 2020, 6:30 PM
Lauren Dyer, Mental Health and Meditation Release Date: Thursday, October 8, 2020, 6:30 PM
Dr. Jennifer Queally, Boston Children’s Hospital How Changes in Information Processing and Executive Functioning Skills can Undermine Learning Release Date: Thursday, October 15, 2020, 6:30 PM
In honor of Spina Bifida Awareness Month, we petitioned Massachusetts Governor Charlie Baker to officially proclaim October to be Spina Bifida Awareness Month. We are grateful to the Governor for his recognition and support. This is a great step forward toward greater public awareness and we will continue our advocacy across all of our New England states!
This November, we will be partnering with Rebecca’s Nut Free Gourmet Cookies and Cookie Dough. November 2-23, you will be able to order from a wide range of pre-portioned cookie dough ready to pop into your oven. Select from chocolate chip, chocolate brownie, snickerdoodle, and many other flavors.
Orders will be delivered in early December, just in time to get into the holiday spirit! This fundraiser will help support our All New England Holiday-in-a-Box and is a great way to share a holiday treat with friends and family. Grab a box for yourself, or as a gift for a friend! You will be able to place your order at https://www.rebeccasnutfree.com/product/spina-bifida-association-of-greater-new-england/43.
Our Quaranteen Calls are scheduled for the Fall! Join us for Zoom video calls for teens and tweens on the dates below. This is an awesome opportunity to stay virtually connected with friends and mentors from BEST Meets BLING Weekend during this time of social distancing.
Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.
Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.
Watch for our upcoming Adult Group Activities here.
At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. Please check this list frequently, and reach out to us directly if you need assistance. We are here for you. Together, we are #sbstrong.
“The Spina Bifida Report” is now on-the-air and being heard all around the world!
To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it.
“The Spina Bifida Report” is now on everyone’s mobile devices (iPhones and Androids) and can be heard on all of the major podcast platforms, including Google Podcasts, Apple Podcasts, Spotify and iHeart Radio.
You can find the show by typing “Abilities Radio” into any of the search boxes on the podcast platform of your choice. You can also access the links by going to www.AbilitiesRadio.com.
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Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.
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