Welcome to the Spina Bifida Association of Greater New England
We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.
Jean BertschmannDear SBAGNE Community,It is with great pleasure that I introduce our new Executive Director, Jean Bertschmann. Jean enthusiastically accepted the reins of the position just a few weeks ago, and officially began working for SBAGNE on July 8. Some of you may have already met her at our annual ...
Gather your friends, family and coworkers, and join us for theMaine Walk-N-Roll and Summer Picnic Saturday, August 10th at Pineland Farms inNew Gloucester, MaineBenefiting the Spina Bifida Association of Greater New EnglandThe Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to ...
SBAGNE will be returning to the Boston Abilities Expo from September 13-15. This event helps you connect with organizations like ours, test cool, new assistive devices, and try out adaptive sports and recreation. We hope you’ll stop by our table to say hello! Or you could spend a few hours ...
Are you a runner in need of a new race goal for 2019? Looking for a new way to give back to you community? Join our Falmouth Road Race Team!Each year, SBAGNE constituents, friends, and supporters participate in the annual New Balance Falmouth Road Race. This scenic 7-mile running race ...
ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...
Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound? Or maybe you've used duct tape to open a jam jar? If you have done either of these things (or a slew of other tricks) then you've made use of a life ...
A DIY event is a fundraising event organized and hosted by you in your community.
Want to raise money for SBAGNE? Hold a DIY event. See the guidelines and ideas for your fundraiser.
REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts.
You can search the inventory here.
The latest news can be read online.
It is with great pleasure that I introduce our new Executive Director, Jean Bertschmann. Jean enthusiastically accepted the reins of the position just a few weeks ago, and officially began working for SBAGNE on July 8. Some of you may have already met her at our annual Walk ‘n Roll in June, since she spent the day working hard as a volunteer to help make this event the success it was.
What drew Jean to SBAGNE was the unique and critical resource it provides to families living with spina bifida, as well as the strength of its volunteer leadership and staff. Her commitment to our organization is evident, and I am confident as ever that she will serve our community well as our Executive Director.
Jean comes to us with over 20 years of leadership experience in nonprofits as well as in local and regional government. She has previously served as Executive Director of Live4Evan, a nonprofit organization providing temporary housing and other support to families whose children are receiving congenital cardiac treatments. She has also served on multiple boards of mission-driven, direct service nonprofits.
Jean lives in Hopkinton, MA with her husband and four daughters and is an avid quilter and community volunteer. She looks forward to connecting with the SBAGNE community and supporting the essential resources it provides to families.
The Board would like to thank Kirk Joslin for serving as our Interim Executive Director these last few months. He will be assisting Jean in the transition for the next two weeks. Please join me in thanking Kirk for his service and welcoming Jean to our SBAGNE office!
Gather your friends, family and coworkers, and join us for the
Maine Walk-N-Roll and Summer Picnic
Saturday, August 10th at Pineland Farms in
New Gloucester, Maine
Benefiting the Spina Bifida Association of Greater New England
The Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida and celebrate the accomplishments of the over 180,000 Americans living with it . All proceeds are used for programs and services for people living with Spina Bifida.
The Spina Bifida Association of Greater New England (SBAGNE) is an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected.
Announcements/Awards will start at 10:20am with a 10:30am walk to follow. Come early to register for the walk! Our registration tables will open at 10:00am
From 11:00am to 12:30pm we will have lawn games, lunch and activities to include a small resource fair. We will have Northern Passage joining us for an adaptive cycling and lacrosse demo and to allow folks to try out equipment. Some lovely princesses will also be stopping by for a visit!
Around 1:00pm we will take a trip to Pineland Farms to have a brief tour and visit the animals. Families are welcome to stay at the farm until their closing or as long as you’d like.
Come for part of the day or stay for all!! Either way, we’d love to see you!! Feel free to invite friends and family too!
Please RSVP for picnic attendance so we can get a rough count on lunch!
SBAGNE will be returning to the Boston Abilities Expo from September 13-15. This event helps you connect with organizations like ours, test cool, new assistive devices, and try out adaptive sports and recreation. We hope you’ll stop by our table to say hello! Or you could spend a few hours representing SBAGNE! Email llambert@sbagreaterne.org to volunteer to help cover our booth, meet prospective members, and talk about your favorite SBAGNE programs! Learn more about the Abilities Expo at https://www.abilities.com/boston/. This event is free and open to the public.
Are you a runner in need of a new race goal for 2019? Looking for a new way to give back to you community? Join our Falmouth Road Race Team!
Each year, SBAGNE constituents, friends, and supporters participate in the annual New Balance Falmouth Road Race. This scenic 7-mile running race begins in Woods Hole in Falmouth, Massachusetts and ends on Grand Avenue across from Falmouth Heights Beach. As a way of giving back to the local community, the Falmouth Road Race allots a certain number of race bibs for non-profits. This year, SBAGNE has been offered 30 bibs. If you would like to learn more or join the team, email Laura Lambert at llambert@sbagreaterne.org. This year’s race will take place on Sunday, August 18th. The minimum fundraising amount for 2019 is $750. To learn more about the Falmouth Road Race, visit https://falmouthroadrace.com/.
While the Walk is over, you can still donate! Thank you to all those who walked and donated. If you would like to donate, click here.
Gather your friends, family and coworkers, and join us for the
10th Annual Walk-N-Roll for Spina Bifida!
Massachusetts
Saturday, June 22, 2019
Benefiting the Spina Bifida Association of Greater New England
The Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida and celebrate the accomplishments of the over 180,000 Americans living with it . All proceeds are used for programs and services for people living with Spina Bifida.
The Spina Bifida Association of Greater New England (SBAGNE) is an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. Join us at the Pappas Rehabilitation Hospital in Canton, MA (formerly Mass Hospital School).
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