Home

Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

The Spina Bifida Report

"The Spina Bifida Report" is now on-the-air and being heard all around the world!To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. "The Spina Bifida Report" is now on everyone's mobile devices (iPhones ...

Read More

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...

Read More

ABLE Account

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...

Read More

Barrier Free Playgrounds

Looking for a barrier-free playground in Massachusetts? Look no further. Check out the listing here. Updated regularly.

Read More

Life Hacks

Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound?  Or maybe you've used duct tape to open a jam jar?  If you have done either of these things (or a slew of other tricks) then you've made use of a life ...

Read More

REquipment - Durable Medical Equipment

REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts. You can search the inventory here. The latest news can be read online.

Read More


Jean Driscoll Dream Big Award

The SBAGNE offers this $1000 award as a tribute to Jean Driscoll, an eight-time Boston Marathon Champion and adult living with Spina Bifida. The SBAGNE is seeking to support an individual in “pursuing their passion” as Jean Driscoll has in her life. The award may be used for educational, developmental or assistive programs and needs and will be awarded to a SBAGNE constituent of over the age of 14, with Spina Bifida who best demonstrates the character and determination of the scholarship’s namesake. An individual can self-nominate or be nominated by another. If you’re interested in applying take a look at the information here.

NEW PROGRAM for tweens/teens 11 – 18, their siblings, and parents!

Please join us at the Browne Center in Durham, NH on Saturday, July 11, 2020 from 10 am – 2 pm. All meals and equipment will be provided. This will be a fun, active, inclusive experience for our SB kids and their siblings, with separate programming for parents. Registration fee: $25/family. Registration fees will be refunded if the event is canceled for any reason. For more information on the Browne Center, please visit their website: https://brownecenter.com/

Comedy Night with Johnny Pizzi at Raging Endorphins Comedy Club – Oct 2, 2020

Join us on Friday, October 2nd for a fun night of stand-up comedy with the Queen of Boston Comedy, Christine Hurley! All to benefit the Spina Bifida Association of Greater New England!

Christine will be joined by Comedian Chris Zito, host of MIX 93.1 FM radio morning show, and hosted by one of Boston’s favorite comedy headliners and hosts, Mark Riley!

Doors open at 6 PM and the show starts at 8pm.

Raging Endorphins Comedy Club at the End Zone Sports Pub, 39 Milford Street, Mendon, MA 01756

Tickets are $25 per person.

This event is open to people ages 21+.

Register for this event at https://www.eventbrite.com/e/comedy-night-at-raging-endorphins-comedy-club-tickets-98064364153

Thank you to Raf Cardenas for coordinating this event!

Proceeds from this event will benefit the Spina Bifida Association of Greater New England.

Cinco de Mayo Trivia Night – May 5, 2020

Tuesday, May 5th, Cinco de Mayo Trivia Night, 6:30 – 9:00 PM
Compete against your friends, family, and everyone you know at Trivia Night at the Baramor this Cinco de Mayo!

Where:
Baramor | Bar & Restaurant
45 Union Street, Newton, MA 02459

About this Event:
The Baramor is partnering with the Spina Bifida Association of Greater New England to host a Cinco de Mayo Party and Trivia Night! Come for the trivia, stay for a special event menu of food and drinks as you catch up with old friends, make new ones, and compete to be trivia champ.

This event is open to the public and is best suited for people 18+. Cover charge is $5 per person and spaces are limited. Trivia teams should be groups of up to 6 people. Parties of more than 6 may have to split into multiple teams.

Proceeds from this event (including cover charge and food and drink purchases) will benefit the Spina Bifida Association of Greater New England.

Register at: https://www.eventbrite.com/e/cinco-de-mayo-trivia-night-at-baramor-tickets-96524043011

The Spina Bifida Report

“The Spina Bifida Report” is now on-the-air and being heard all around the world!

To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. 

“The Spina Bifida Report” is now on everyone’s mobile devices (iPhones and Androids) and can be heard on all of the major podcast platforms, including Google Podcasts, Apple Podcasts, Spotify and iHeart Radio

You can find the show by typing “Abilities Radio” into any of the search boxes on the podcast platform of your choice. You can also access the links by going to www.AbilitiesRadio.com.

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that  we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.

Our upcoming Adult Group Activities are:

June 6th: Adaptive Sailing at Piers Park Sailing Center in East Boston, MA, 11AM-1:30PM

Donate Today!
Join Now

Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.

SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900