Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.

SB COVID-19 Vaccine Update

This update provides some of the latest information to help keep people with Spina Bifida and their loved ones healthy. Click here.

SBA’s 2020 Virtual Teal on the Hill

March 1-5, 2021

Click here to register

Teal on the Hill is an annual event that brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention (CDC); disability rights; and affordable and accessible health care, medical supplies, and technologies.

Wellness Challenge

Our Wellness Challenge started on Monday, February 15th with a virtual kick-off event led by fitness coach, Amy Bois, and pro-athlete, Daniel Romanchuk! If you haven’t already joined our 30-day challenge and would like to be a part of the fun, REGISTER HERE!

Have you made your New Year’s resolutions? The new year is a time for many people to focus on their physical, mental, or dietary health and we are here to help you on that journey! SBAGNE is teaming up with the SBA of Northeastern New York to host a 30-day fitness challenge. Join individuals living with spina bifida and their families across New England and New York State as we challenge ourselves to be healthier.

Participants are eligible to receive prizes, incentives for completing challenges, access to fitness and nutrition resources, healthy living virtual programs, and more, all provided at no cost to you! Each week, tune in to seminars on nutrition, mental health, and meditation, or join an adaptive workout, and perform activities on your weekly health checklist in accordance with your individual needs and goals. Then check in each Sunday with the Sweat with SBANENY and SBAGNE Facebook group or in our group on the My Fitness Pal app.   We hope you will join us!

To learn more and sign up today, click HERE  Please email any questions to Julia or Jean: Julia: admin@sbaneny.org & Jean: jbertschmann@sbagreaterne.org

SBAGNE Committee Volunteers

We are looking for volunteers to help us plan 2021! If you would like to hlep us plan our event and programs or develop our fundraising strategy, take a moment to fill out our Committee Volunteer Form to tell us about yourselves, your skills and your interests.

Covid-19 Resources

At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. Please check this list frequently, and reach out to us directly if you need assistance. We are here for you. Together, we are #sbstrong.

Thanks to generous donations from our friends at 180Medical, Cure Medical, Hollister, and Wellspect, SBAGNE has catheters available in multiple sizes and styles. If you are having difficulty ordering or affording catheters, please check our list and email Jean Bertschmann at JBertschmann@SBAGreaterNE.org to request what you need. https://drive.google.com/file/d/1QyLaz9Xg2FMtbRNuOphJ85cbD200Ytfl/view?usp=sharing

If you have unopened supplies that you would like to donate, please also email Jean Bertschmann at JBertschmann@SBAGreaterNE.org.

Covid-19 Resources

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that  we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.

Watch for our upcoming Adult Group Activities here.

Call-In to Our Quaran-teen Video Chat

Our Quaranteen Calls are scheduled for the Fall! Join us for Zoom video calls for teens and tweens on the dates below. This is an awesome opportunity to stay virtually connected with friends and mentors from BEST Meets BLING Weekend during this time of social distancing.

Contact Jean Bertschmann at jbertschmann@sbagreaterne.org with questions, link requests, or RSVPs.

Join us by clicking the link below or by selecting the “Join Call” button.


Upcoming dates for Quaran-teen calls:

Watch for new dates soon!

Accessibility Badge

Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.

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Thank you to Our Sponsors!



Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.

219 East Main St.
Ste 100B
Milford, MA 01757