Our Mission
The mission of the Spina Bifida Association of New England is to build a better and brighter future for all those impacted by Spina Bifida.
Our Vision
We envision a world where everyone impacted by Spina Bifida is accepted and thrives.
Newly Diagnosed?
It’s going to be OK – you are not alone! Click here for resources available to you.
Upcoming Events
Join Us
2022 Regional Education Conference
2022 Regional Education Conference
SBAGNE is very excited to bring a fun filled two days of education, community and connection to its members! Starting on November 4th through the 5th our conference will contain […]
Dia Familiar en el parque Martin Richard para nunestra comundida latina y portugesa
Dia Familiar en el parque Martin Richard para nunestra comundida latina y portugesa
Vengan y compartan con otras familias Latinas y Portuguesas mientras los niños disfrutan jugando en uno de los parques mas accessibles de Boston. Nos reuniremos en el Amfiteatro Wood a […]
Dia de Diversão em Família no Martin’s Park, Boston
Dia de Diversão em Família no Martin’s Park, Boston
Venha conhecer outras famílias em nossas comunidades que também falam Português e Espanhol enquanto as crianças se divertem brincando em um dos parques mais acessíveis de Boston! Nos encontraremos […]
Disability Justice Parade
Disability Justice Parade
Join us on October 15th, 2022 from 12-3pm, for the New Hampshire’s first ever Disability Pride Justice Parade! All members from SBAGNE will walk together in the parade to represent […]
Lime Rock Driving Experience
Lime Rock Driving Experience
A fun day at one of the region’s most historic and scenic race tracks, Lime Rock Park, nestled in the beautiful Berkshires during the best time of year to visit. […]
Bruins 50/50 Raffle
Bruins 50/50 Raffle
We’re excited to be kicking off the hockey season with the Bruins! Starting with their first preseason game on 9/27 against the Rangers raffle tickets will be sold through the […]
Cookie Dough Fundrasier
Cookie Dough Fundrasier
Our Fall Cookie Dough Fundraiser is back! This is the perfect fall treat of after school or for a fun fall acitivity. Rebeccca’s Nut Free gourmet cookies company is dedicated […]
Parent to Parent Chat
Parent to Parent Chat
Join us virtually every fourth Thursday of the month at 7:30pm for our Parent-to-Parent chat. This group is designed for parents of children with Spina Bifida. CLICK HERE to join
Meet up with the Mentors
Meet up with the Mentors
Meet us every second Monday of the month for our virtual Meet up with the Mentors chat! This is a great way for our teen Spina Bifida community to speak […]
Adult Group
Adult Group
Join us every third Tuesday of the month at 6:30pm for our virtual adult group. All adults with Spina Bifida are welcome to attend and connect with others living with […]
Getting Involved
How You Can Help
Volunteer Today
SBAGNE welcomes volunteers to support development, programming and advocacy. We are stronger together! If you are interested in learning more about our current volunteer opportunities, please click the button below to complete an online form or contact Jean Bertschmann.
Donate Today
Why give? Lives are changed by the programs SBAGNE creates, the services we provide and the accomplishments of our advocacy and awareness efforts. As part of the Spina Bifida Association network of chapters, SBAGNE touches hundreds of people each year. This is only made possible with the generous support of individuals like you!
You can help SBAGNE by Shopping with Us! A portion of your purchases with select vendors is donated back to SBAGNE. Shop with Uniteable for inclusive fashion. Support us by shopping with Amazon and Amazon donates back to us. Looking for a little swag? Look no further! Check out the offering in our Bonfire store! Simply click the button below and check out the offerings.
Announcements
More Info for You
SBA Teal on the Hill
Teal on the Hill is an annual event that brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention...
SB Blog
Blog posts from the Spina Bifida Association
Accessibility Badge
Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.
Meet Members of our Adult Group
Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their...
SBAGNE Committee Volunteers
We are looking for volunteers to help us plan 2021! If you would like to hlep us plan our event and programs or develop our fundraising strategy, take a moment to fill out our Committee Volunteer Form to tell us about yourselves, your skills and your interests....