Home

Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

Accessibility Badge

Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.

Read More

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...

Read More

Covid-19 Resources

At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. ...

Read More

The Spina Bifida Report

"The Spina Bifida Report" is now on-the-air and being heard all around the world!To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. "The Spina Bifida Report" is now on everyone's mobile devices (iPhones ...

Read More

ABLE Account

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...

Read More

Barrier Free Playgrounds

Looking for a barrier-free playground in Massachusetts? Look no further. Check out the listing here. Updated regularly.

Read More

Life Hacks

Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound?  Or maybe you've used duct tape to open a jam jar?  If you have done either of these things (or a slew of other tricks) then you've made use of a life ...

Read More

REquipment - Durable Medical Equipment

REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts. You can search the inventory here. The latest news can be read online.

Read More


Express Feedback for Good

Starting TODAY, you can give without spending with Express Feedback for Good! This program allows people to support a cause they’re passionate about by sharing their opinions on companies and brands. You can use your voice to create real impact for SBAGNE. Funds raised will be used to support our virtual Holiday Party and other critical programming.

How does Express Feedback™ for Good work? Sign up in about a minute by visiting https://hundredxinc.com/efg-spinabifida and select “Greater New England” from the drop box when asked which spina bifida organization you would like to support. Then, pick a company from 1,500+ options and share your opinion in 60-seconds. Each quality opinion you share creates $2 to support SBAGNE.

Share up to 75 opinions and create $150. It’s that easy! Go to  https://hundredxinc.com/efg-spinabifida to get started TODAY. This program ends on October 27th, so we encourage you to act quickly to give without spending!

Express Feedback for Good™ is committed to respecting and protecting your information. Your contact information is not sold to 3rd parties. During the 30-day campaign, you’ll simply be asked to share opinions you have on companies and brands using an emoji-based, 60-second process.  

Express Feedback for Good™ is totally free! Sharing honest feedback on companies and brands you interact with every day creates funds to help SBAGNE. When you choose Express Feedback, personal information you submit is encrypted and remains confidential. You will NOT be marketed to, asked to buy a product, or contacted without your permission.

October Speaker Series

In lieu of our Regional Conference, SBAGNE is pleased to present a Speaker Series for Spina Bifida Awareness Month. Recordings will be released on he following schedule, and links will be updated on the website commensurately.

Dr. Mary Dubon, Boston Children’s Hospital
Physical Activity and Sports Participation for Yourth with Spina Bifida.
Release Date: Thursday, October 1, 2020, 6:30 PM

Lauren Dyer, Mental Health and Meditation
Release Date: Thursday, October 8, 2020, 6:30 PM

Dr. Jennifer Queally, Boston Children’s Hospital
How Changes in Information Processing and Executive Functioning Skills can Undermine Learning
Release Date: Thursday, October 15, 2020, 6:30 PM

Spina Bifida Awareness Month Proclamation from Governor Baker

In honor of Spina Bifida Awareness Month, we petitioned Massachusetts Governor Charlie Baker to officially proclaim October to be Spina Bifida Awareness Month.  We are grateful to the Governor for his recognition and support.  This is a great step forward toward greater public awareness and we will continue our advocacy across all of our New England states!

Thank you!

Brand New Program for Kids 6 and under!

Who: SB kiddos, ages 6 and under, their siblings and their parents

When: Saturday, October 17, 2020, 10 AM

Where: Your Computer!

Why: Fun, interactive games and family connections!

Cost: $0

Please join us for an engaging episode of family fun, facilitated by the Maine Outdoor Adaptive Education Center staff.  They have some special games, riddles and crafts lined up for he kids and it’s a great opportunity for families to connect!

For more information on the Maine Outdoor Adaptive Education Center, please check out their website: https://www.adaptiveoutdooreducationcenter.org

Register now!

Brand New Program for Kids 7-10!

Who: SB kiddos, ages 7-10, their siblings and their parents

When: Saturday, October 24, 2020, 10 am – 12 pm

Where: Your Computer!

Why: Fun, interactive games and family connections!

Cost: $0

Please join us for an engaging episode of family fun, facilitated by the Browne Center staff.  Parents will enjoy a separate Coffee and Conversation opportunity, while our SB kiddos and their siblings have a blast working in teams to solve puzzles, play games, build connections.  We hope you can join us!

For more information on the Browne Center, please visit their website: https://brownecenter.com/

Register now!

The 2020 Virtual Holiday Party is Coming!

Registration Deadline October 22, 2020

Join us for a virtual Holiday Party on Saturday, December 5 at 7 pm. Connect with friends – old and new – all across New England to open your Holiday Box from SBAGNE, enjoy gifts, crafts, games, and community.

Just before Thanksgiving, we will send out a box to each individual and family who register, and look forward to “unboxing” and celebrating together on the night of the party. We wish we could be together in person, but are excited to celebrate together however we can!

Who: Our entire membership
When: Saturday, December 5, 2020, 7:00 pm
Where: Your computer!
Why: To celebrate our community
Cost: $0!

Register Now!

 

SBAGNE No-Bake Sale!

This November, we will be partnering with Rebecca’s Nut Free Gourmet Cookies and Cookie Dough. November 2-23, you will be able to order from a wide range of pre-portioned cookie dough ready to pop into your oven. Select from chocolate chip, chocolate brownie, snickerdoodle, and many other flavors.

Orders will be delivered in early December, just in time to get into the holiday spirit! This fundraiser will help support our All New England Holiday-in-a-Box and is a great way to share a holiday treat with friends and family. Grab a box for yourself, or as a gift for a friend! You will be able to place your order at https://www.rebeccasnutfree.com/product/spina-bifida-association-of-greater-new-england/43.

Call-In to Our Quaran-teen Video Chat

Our Quaranteen Calls are scheduled for the Fall! Join us for Zoom video calls for teens and tweens on the dates below. This is an awesome opportunity to stay virtually connected with friends and mentors from BEST Meets BLING Weekend during this time of social distancing.

Contact Jean Bertschmann at jbertschmann@sbagreaterne.org with questions, link requests, or RSVPs.

Join us by clicking the link below or by selecting the “Join Call” button.

https://us02web.zoom.us/j/88631467290?pwd=Sko4ZmFTcjJqbFJqRTQ1Y2QrazhUdz09

Upcoming dates for Quaran-teen calls:

Accessibility Badge

Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that  we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.

Watch for our upcoming Adult Group Activities here.



Donate to or Join SBAGNE

Donate Today!
Join Now

Donate through Paypal



Thank you to Our Sponsors!

 

 


Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.


SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900