Welcome to the Spina Bifida Association of Greater New England
We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.
SBAGNE will be returning to the Boston Abilities Expo from September 13-15. This event helps you connect with organizations like ours, test cool, new assistive devices, and try out adaptive sports and recreation. We hope you’ll stop by our table to say hello! Or you could spend a few hours ...
Join our Adult Group! Adult Group dinners and events aregeared towards adults living with Spina Bifida age 18 and up. Attendees arewelcome to bring a friend or family member. This group was made to provide peersupport for adults living with spina bifida and their loved ones. So that we can ...
Are you a runner in need of a new race goal for 2019? Looking for a new way to give back to you community? Join our Falmouth Road Race Team!Each year, SBAGNE constituents, friends, and supporters participate in the annual New Balance Falmouth Road Race. This scenic 7-mile running race ...
Gather your friends, family and coworkers, and join us for the10th Annual Walk-N-Roll for Spina Bifida!MassachusettsSaturday, June 22, 2019Benefiting the Spina Bifida Association of Greater New EnglandThe Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida ...
ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...
Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound? Or maybe you've used duct tape to open a jam jar? If you have done either of these things (or a slew of other tricks) then you've made use of a life ...
A DIY event is a fundraising event organized and hosted by you in your community.
Want to raise money for SBAGNE? Hold a DIY event. See the guidelines and ideas for your fundraiser.
REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts.
You can search the inventory here.
The latest news can be read online.
Dream Big! The SBAGNEs Board of Directors is now accepting applications for the Annual Jean Driscoll Award. The application deadline is June 4th. The SBAGNE offers this $1000 scholarship as a tribute to Jean Driscoll, an eight-time Boston Marathon Champion and adult with Spina Bifida. To download the Official Posting ...
SBAGNE will be returning to the Boston Abilities Expo from September 13-15. This event helps you connect with organizations like ours, test cool, new assistive devices, and try out adaptive sports and recreation. We hope you’ll stop by our table to say hello! Or you could spend a few hours representing SBAGNE! Email llambert@sbagreaterne.org to volunteer to help cover our booth, meet prospective members, and talk about your favorite SBAGNE programs! Learn more about the Abilities Expo at https://www.abilities.com/boston/. This event is free and open to the public.
Join us for our annual Massachusetts Summer Picnic
June 22, 2019, 11:30AM
Pappas Rehabilitation Hospital in Canton, MA
Enjoy lunch sponsored by Eurest Catering, magic tricks
by Great Scott, airbrush tattoos by Raddo, pontoon boat rides, indoor swimming,
sled hockey demonstrations. Get to know other people in the Spina Bifida
community, make new friends, and catch some summer sun!
Join our Adult Group! Adult Group dinners and events are
geared towards adults living with Spina Bifida age 18 and up. Attendees are
welcome to bring a friend or family member. This group was made to provide peer
support for adults living with spina bifida and their loved ones. So that we can give accurate head counts to
restaurants, we ask attendees to RSVP with the number of their party to Laura
Lambert at llambert@sbagreaterne.org
by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and
promotes Adult Group events. At this time, we ask attendees to cover their own
meal expenses. Watch Facebook for updates and become part of our Adult Group
email list by contacting llambert@sbagreaterne.org.
Save the date of our next Adult Group dinners:
April 26, 2019, 6:30pm
Lucy’s American Tavern (13 Granite Ave, Dorchester, MA
02124)
May 24, 2019, 6:30pm
Wahlburgers (19 Shipyard Dr, Hingham, MA 02043)
June 28, 2019, 6:30pm
Double Chin HK Cafe (86 Harrison Ave, Boston, MA
02111)
Are you a runner in need of a new race goal for 2019? Looking for a new way to give back to you community? Join our Falmouth Road Race Team!
Each year, SBAGNE constituents, friends, and supporters participate in the annual New Balance Falmouth Road Race. This scenic 7-mile running race begins in Woods Hole in Falmouth, Massachusetts and ends on Grand Avenue across from Falmouth Heights Beach. As a way of giving back to the local community, the Falmouth Road Race allots a certain number of race bibs for non-profits. This year, SBAGNE has been offered 30 bibs. If you would like to learn more or join the team, email Laura Lambert at llambert@sbagreaterne.org. This year’s race will take place on Sunday, August 18th. The minimum fundraising amount for 2019 is $750. To learn more about the Falmouth Road Race, visit https://falmouthroadrace.com/.
Gather your friends, family and coworkers, and join us for the
10th Annual Walk-N-Roll for Spina Bifida!
Massachusetts
Saturday, June 22, 2019
Benefiting the Spina Bifida Association of Greater New England
The Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida and celebrate the accomplishments of the over 180,000 Americans living with it . All proceeds are used for programs and services for people living with Spina Bifida.
The Spina Bifida Association of Greater New England (SBAGNE) is an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. Join us at the Pappas Rehabilitation Hospital in Canton, MA (formerly Mass Hospital School).
Dream Big! The SBAGNEs Board of Directors is now accepting applications for the Annual Jean Driscoll Award. The application deadline is June 4th. The SBAGNE offers this $1000 scholarship as a tribute to Jean Driscoll, an eight-time Boston Marathon Champion and adult with Spina Bifida. To download the Official Posting document and Application Form, visit the Jean Driscoll Dream Big page.
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Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.
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