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Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

Covid-19 Resources

At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. ...

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The Spina Bifida Report

"The Spina Bifida Report" is now on-the-air and being heard all around the world!To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. "The Spina Bifida Report" is now on everyone's mobile devices (iPhones ...

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Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So ...

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ABLE Account

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. They are the result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014, better known as the ABLE Act. The beneficiary of the account is the owner, and income earned ...

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Barrier Free Playgrounds

Looking for a barrier-free playground in Massachusetts? Look no further. Check out the listing here. Updated regularly.

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Life Hacks

Have you ever stuck a phone or iPod into a empty toilet paper roll to amplify the sound?  Or maybe you've used duct tape to open a jam jar?  If you have done either of these things (or a slew of other tricks) then you've made use of a life ...

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REquipment - Durable Medical Equipment

REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts. You can search the inventory here. The latest news can be read online.

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Join or Support our Falmouth Road Race Team!

The 2020 New Balance Falmouth Road Race has officially gone virtual! We invite you to join Team Spina Bifida to run the New Balance Falmouth Road Race “At-Home Edition” beginning on August 15th and ending on August 29th.

You can also support our team by donating at: https://charity.gofundme.com/o/en/campaign/spina-bifida-association-of-greater-new-england1

This year’s race will look different from past years, with participants running in their own homes and neighborhoods, but it continues to be an amazing opportunity to raise awareness and connect with others through virtual and socially distant means.

SBAGNE has been part of this event for many years and the race is a vital aspect of our fundraising and awareness. In light of the coronavirus pandemic, our ability to support the spina bifida community in New England is more important than ever. We hope you agree.

As always, registration fees for members of Team Spina Bifida are covered by SBAGNE, so that you can focus your energy on fundraising in your community and training for race day. To learn more or to join our team, contact Laura Lambert at llambert@sbagreaterne.org.
Support our team by donating at https://charity.gofundme.com/o/en/campaign/spina-bifida-association-of-greater-new-england1

We can’t wait to (virtually) race with you this August!

All New England Walk-N-Roll and Picnic

Announcing our Virtual

All New England Walk-N-Roll and Picnic

We invite you to participate in a week of virtual programming and activities for you and all your friends!

After great consideration, we have decided to combine our annual northern and southern Walk-N-Rolls and Summer Picnics into a 4-day virtual event open to all our members across New England.

This decision comes with a desire to do our part to maintain social distance while still supporting the social well-being of all of our members across New England.

Join us each day for virtual activities and resources!

July 15th July 16th July 17th July 18th
Join us for activities and resources from the great states of Maine and Vermont!
Join us to celebrate the SBAGNE community in New Hampshire and Connecticut! Participate virtually in adaptive athletics from Massachusetts and Rhode Island! Tune in to our Awards Ceremony, hear from Jean Driscoll, and win prizes!

This new event takes the place of both our Massachusetts Walk-N-Roll and Summer Picnic (previously scheduled for June 20th) and our Maine Walk-N-Roll and Summer Picnic (previously scheduled for August 8th).

Fund-raise for the Walk-N-Roll on our GoFundMe Charity Campaign Page now through July 18th and participate in our virtual picnic activities, connect with resources and more on our Facebook Event Page July 15-18.

Ways to participate:

Join our All New England Walk-N-Roll Campaign!

  • Visit our campaign page at https://charity.gofundme.com/o/en/campaign/ma-walk-n-roll-2020 and set up your team or support an existing team.
    • By creating a team, you become eligible for incentives and prizes! See more below.
    • Remember, your fundraising dollars are critical to our programming!
  • Click “GOING” on our Facebook Event Page to participate in the fun.
  • Post your Walk-N-Roll photos and videos to our Facebook Event Page throughout the week.
    • Show us where you walk and roll for spina bifida!


Join our All New England Picnic Activities!

  • Click “GOING” on our Facebook Event Page to join in the activities.
  • Show your state pride by posting photos and videos of your talents, hobbies, or favorite quarantine activities to the Facebook Event Page on your state’s day. Some suggestions include:
    • music, comedy, or dancing
    • cooking, gardening, or handicrafts
    • tricks, wheelies, or yo-yo skills
    • skits or anything else you’re good at or just love doing
  • Participate in virtual adaptive workouts and a virtual visit to Pineland Farms
  • Meet our sponsors and hear from local resources and ask them your questions
  • Hear from pro-athletes, Jean Driscoll and Daniel Romanchuk
  • Compete for prizes! Post photos or video of your entries on your state’s day to our Facebook Event Page and vote for your favorites by hitting the “LIKE” button Compete for:
    • Best-dressed (costumes, party clothes, whatever makes you smile)
    • Best picnic decorations (decorate your living room, backyard, adaptive equipment)
    • Most creative sandwich
    • Best picnic dessert (go for most creative, most beautiful)
    • Best “mocktail”
  • AND join us on Friday, July 17th at 7pm for an “All New England Video Chat” on our Facebook Messenger Room!

Fund-Raise with us on GoFundMe Charity

Set up your team or join an existing team to participate in our annual Walk-N-Roll fundraising by visiting our GoFundMe Charity Campaign Page and clicking “JOIN.”

The annual Walk-N-Roll is a way for the community to support SBAGNE’s efforts to bring meaningful programming to people of all ages living with spina bifida and their families.

The annual Walk-N-Roll is a way for the community to support SBAGNE’s efforts to bring meaningful programming to people of all ages living with spina bifida and their families.

Fund-Raising Milestones & Incentives

Fundraising can be fun, empowering, and competitive. Just check out these milestones and the gifts that accompany them.

  • Just for joining, we’ll send you a Cloth Face Mask so you can wear your spina bifida pride while keeping yourself and others safe!
  • Raise $100 to earn 2020 Walk-N-Roll t-shirts for you and your team and you will support our outreach to hospitals and clinics.
  • Raise $250 to earn a set of classy Slate Coasters and your efforts will underwrite one Empowerment Program Benefit.
  • Raise $500 to earn a Wireless Charging Pad and you will contribute to the cost of an annual Adult Group outing.
  • Raise $1,000 to earn a beautiful Cheese Board Set and underwrite a parent and teen to attend BEST Meets BLING.
  • Raise $2,500 to earn a BBQ Utensil Set and your fund-raising will underwrite a Summer Picnic.
  • Raise $5,000 to earn a Picnic Backpack for Two and cover the costs of our annual Holiday Parties.

Covid-19 Resources

At SBAGNE, we continue to work hard to identify resources that can be of help to all of you during the COVID 19 pandemic. We have started a resource sheet, and are updating it continually. Information is available regarding medical, mental health, fitness, financial, employment, education, and independent living supports. Please check this list frequently, and reach out to us directly if you need assistance. We are here for you. Together, we are #sbstrong.

Thanks to generous donations from our friends at 180Medical, Cure Medical, Hollister, and Wellspect, SBAGNE has catheters available in multiple sizes and styles. If you are having difficulty ordering or affording catheters, please check our list and email Jean Bertschmann at JBertschmann@SBAGreaterNE.org to request what you need. https://drive.google.com/file/d/1QyLaz9Xg2FMtbRNuOphJ85cbD200Ytfl/view?usp=sharing

If you have unopened supplies that you would like to donate, please also email Jean Bertschmann at JBertschmann@SBAGreaterNE.org.

Covid-19 Resources

Comedy Night with Johnny Pizzi at Raging Endorphins Comedy Club – Oct 2, 2020

Join us on Friday, October 2nd for a fun night of stand-up comedy with the Queen of Boston Comedy, Christine Hurley! All to benefit the Spina Bifida Association of Greater New England!

Christine will be joined by Comedian Chris Zito, host of MIX 93.1 FM radio morning show, and hosted by one of Boston’s favorite comedy headliners and hosts, Mark Riley!

Doors open at 6 PM and the show starts at 8pm.

Raging Endorphins Comedy Club at the End Zone Sports Pub, 39 Milford Street, Mendon, MA 01756

Tickets are $25 per person.

This event is open to people ages 21+.

Register for this event at https://www.eventbrite.com/e/comedy-night-at-raging-endorphins-comedy-club-tickets-98064364153

Thank you to Raf Cardenas for coordinating this event!

Proceeds from this event will benefit the Spina Bifida Association of Greater New England.

The Spina Bifida Report

“The Spina Bifida Report” is now on-the-air and being heard all around the world!

To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. 

“The Spina Bifida Report” is now on everyone’s mobile devices (iPhones and Androids) and can be heard on all of the major podcast platforms, including Google Podcasts, Apple Podcasts, Spotify and iHeart Radio

You can find the show by typing “Abilities Radio” into any of the search boxes on the podcast platform of your choice. You can also access the links by going to www.AbilitiesRadio.com.

Meet members of our Adult Group

Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their loved ones. So that  we can give accurate head counts to restaurants, we ask attendees to RSVP with the number of their party to Laura Lambert at llambert@SBAGreaterNE.org by the RSVP date. SBAGNE makes reservation, and schedules, organizes, and promotes Adult Group events. At this time, we ask attendees to cover their own meal expenses. Watch Facebook for updates and become part of our Adult Group email list by contacting llambert@SBAGreaterNE.org.

Watch for our upcoming Adult Group Activities here.



Donate to or Join SBAGNE

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Thank you to Our Sponsors!

 

 


Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.


SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900