Our Mission
The mission of the Spina Bifida Association of New England is to build a better and brighter future for all those impacted by Spina Bifida.
Our Vision
We envision a world where everyone impacted by Spina Bifida is accepted and thrives.
Newly Diagnosed?
It’s going to be OK – you are not alone! Click here for resources available to you.
Upcoming Events
Join Us
We’re Hiring!
We’re Hiring!
Dear SBAGNE Community – We are sad to share that our wonderful Operations Manager, Laura Browne-Lambert, will be leaving SBAGNE at the end of August. Laura has been a […]
Sailing with Adult Group
Sailing with Adult Group
Join SBAGNE’s Adult Group for adaptive sailing! July 9th, 11 AM – 1 PM Piers Park Sailing (95 Marginal St, Boston, MA 02128) RSVP by filling out the Google […]
Accessible Guided Hike
Accessible Guided Hike
Join SBAGNE for an accessible guided hike at Wolfe’s Neck Woods State Park in Freeport, ME on Saturday, July 30th from 10AM – 1PM! Our hike will be guided […]
Meet Your Neighbor at the New Britain Bees
Meet Your Neighbor at the New Britain Bees
Join the Spina Bifida Association of Greater New England, Coloplast, and medical professionals from Yale-New Haven on August 3rd. You’ll have the opportunity to connect with medical professionals who […]
Reserve Your Falmouth Road Race Bib
Reserve Your Falmouth Road Race Bib
The Spina Bifida Association of Greater New England has been invited back to participate in the Falmouth Road Race once again! If you were a member of one or more […]
Meet Your Neighbor at the Woo Sox
Meet Your Neighbor at the Woo Sox
Join the Spina Bifida Association of Greater New England, Coloplast, and medical professionals from Yale-New Haven on September 21st at the Woo Sox. You’ll have the opportunity to connect […]
Getting Involved
How You Can Help
Volunteer Today
SBAGNE welcomes volunteers to support development, programming and advocacy. We are stronger together! If you are interested in learning more about our current volunteer opportunities, please click the button below to complete an online form or contact Jean Bertschmann.
Donate Today
Why give? Lives are changed by the programs SBAGNE creates, the services we provide and the accomplishments of our advocacy and awareness efforts. As part of the Spina Bifida Association network of chapters, SBAGNE touches hundreds of people each year. This is only made possible with the generous support of individuals like you!
You can help SBAGNE by Shopping with Us! A portion of your purchases with select vendors is donated back to SBAGNE. Shop with Uniteable for inclusive fashion. Support us by shopping with Amazon and Amazon donates back to us. Looking for a little swag? Look no further! Check out the offering in our Bonfire store! Simply click the button below and check out the offerings.
Announcements
More Info for You
SBA Teal on the Hill
Teal on the Hill is an annual event that brings hundreds of members of the Spina Bifida community together from across the U.S. to advocate for issues such as continued funding for the National Spina Bifida Program at the Centers for Disease Control & Prevention...
SB Blog
Blog posts from the Spina Bifida Association
Accessibility Badge
Free download available for accessibility badge. Not all disabilities are visible, and this is a helpful tool to have with you when you are out in public, particularly on public transportation.
Meet Members of our Adult Group
Join our Adult Group! Adult Group dinners and events are geared towards adults living with Spina Bifida age 18 and up. Attendees are welcome to bring a friend or family member. This group was made to provide peer support for adults living with spina bifida and their...
SBAGNE Committee Volunteers
We are looking for volunteers to help us plan 2021! If you would like to hlep us plan our event and programs or develop our fundraising strategy, take a moment to fill out our Committee Volunteer Form to tell us about yourselves, your skills and your interests....