Cinco de Mayo Trivia Night – May 5, 2020

Tuesday, May 5th, Cinco de Mayo Trivia Night, 6:30 – 9:00 PM Compete against your friends, family, and everyone you know at Trivia Night at the Baramor this Cinco de Mayo!

Where:Baramor | Bar & Restaurant 45 Union Street, Newton, MA 02459

About this Event:The Baramor is partnering with the […]

2020 BLING/BEST Weekend Registration Closed

BLING/BEST registration is now closed. Thank you to all who registered. If you would like to be put on the wait list, please contact Jean Bertschmann at, or 888.479.1900.

2020 BLING/BEST Registration – Payment

2020 BLING/BEST Registration – No Payment

2020 BLING/BEST Weekend Registration Now Open!

2020 BLING/BEST Weekend Registration

BLING/BEST is a weekend away for girls and boyes age 11-18 living with Spina Bifida (and a parent) filled with games, activities, sports, education, health conversations, social connections and fun. To register, you must live in New England and be a member of SBAGNE.

Registration is open for the annual BLING/BEST […]

The Spina Bifida Report

“The Spina Bifida Report” is now on-the-air and being heard all around the world!

To listen to your interview, or share it with friends and family, there is no need to download The Stroke Channel TV app just to hear it. 

“The Spina Bifida Report” is now on everyone’s mobile […]

Save the Date! BLING Meets BEST Weekend 2020

BLING Meets BEST is a two night, three day event for teens and tweens ages 12-18 living with spina bifida and a parent. This exciting weekend brings youth together for educational seminars, prom makeovers, sports and recreation, self-esteem workshops, friendship, camaraderie, and lots of other fun! Registration information to come soon.


Holiday Party Registration

Annual Appeal Donation

2019 Annual Appeal Underway

The 2019 SBAGNE Annual Appeal is underway!

October is Spina Bifida Awareness Month, and the kickoff to our Annual Appeal Campaign.  With your generous support, SBAGNE can continue to expand and improve our outreach, programming, and financial support to families and individuals across New England living with Spina Bifida.  […]