Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.

Falmouth Road Race has been run but donations are still being accepted! Thank you to all who participated and sponsored a runner!

Latest News

Spaulding Adaptive Sports Centers (SASC) Fall and Winter Programs

The leaves are falling and winter is fast approaching, but this doesn't mean you need to be cooped up inside for the next six months! Spaulding Adaptive Sports Centers (SASC) will be offering our regular programming in Alpine ...

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The Bigger Picture on Disability Policies

Our grassroots action network UsersFirst is the frontline eyes and ears when it comes to our advocacy efforts. UsersFirst Manager Jenn Wolff shares her perspective on disability policies that are worth fighting for and what we hope ...

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‘Wheelchair Challenge’ Offers Students Perspective on Disability

We’re proud to support a group of students at the University of Central Missouri who raised funds to improve campus accessibility by challenging students without disabilities to try to get around campus using a wheelchair. What ...

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Adaptive Sports New Egland

Join Us for the Fall 2014 Paralympic Experience For Youths and Adults who have visual or mobility impairments. 1:00 - 4:30 PM Sunday, November 16, 2014 Harvard University Athletic Complex For more information, visit: http://adaptivesportsne.org/event/new-england-paralympic-experience/

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Power wheelchair comparisons

In the market for a power wheelchair? Here's the first thing you need to know: one size does not fit all. There are lots of choices to make in order to get the right chair ...

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Card that explains sepsis could save your life

In order to help you be as aware as possible about sepsis, and to help your doctor to understand your susceptibility to the condition, the Christopher & Dana Reeve Paralysis Resource Center (PRC) has developed ...

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Wheelchair Ballroom Dancer Elaina

This is such an inspirational story of a young girls journey to become a wheelchair ballroom dancer! It is worth watching!

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EPCI LGBTQ Group for Youth with Disabilities

EPIC is starting an LGBTQ Youth Group specifically for youth with disabilities. This will be a youth-lead, adult-supported group to ensure that LGBTQ youth with disabilities have the opportunity to receive support, education and advocacy ...

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Cinemability: Jenni Takes on Hollywood

A feature length film that is arguably the most comprehensive, up-to-date documentary account of the portrayal of people with disabilities. Read the article now!

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New England Spina Bifida Conference

Mark your calendars! Saturday, September 13, 2014 at the Radisson Hotel in Nashua, NH. Registration is now open!  This is a conference for Families, Individuals, Health Care Professionals and Educators. Friday Evening Social New topics and presenters Kid's Camp Exhibition ...

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Spina Bifida Health Care Program

The Department of Veterans Affairs (VA) Spina Bifida Health Care Benefits Program covers most health care services and supplies that are medically or psychologically necessary. The VA can also reimburse expenses for travel to and ...

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Videos from IF's 25th International Conference on Spina Bifida and Hydrocephalus GENErating Changes in Buenos Aires, Argentina

Opening ceremony, lectures and speeches can be viewed through IF's YouTube channel: http://www.youtube.com/user/IFglobalorg

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The 10 Best Social Sites for Friends with Spina Bifida

If you have Spina Bifida, or love someone who does, we hope you’ll enjoy this list of the 10 Best Social Sites for Friends With Spina Bifida, courtesy of SaveMyMedicalSupplies.org.

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Spina Bifida and Hydrocephalus Support Needed in Pakistan

Read more about the support needed in Pakistan for SB and Hydrocephalus.

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Thank you DCU for Kids

THANK YOU to Digital Federal Credit Union  - DCU for Kids For their recent grant to support the “Get Active “ Initiative Watch this site for upcoming adaptive recreation and sports events to be scheduled this summer!

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Mark Your Calendars – SBAGNE Holiday Parties 2014

Sunday December 7, 2014 12:30– 3:30 Wellesley Community Center, Wellesley, MA (RSVP by 11/28) (directions)

Saturday December 13, 2014 11:30 -3:30 Senator Inn, Augusta, ME (RSVP by 12/5) (directions)

Sunday December 14, 2014 10:00 -2:00 Summit House, Holyoke MA (RSVP by 12/5) (directions)

RSVP to Ellen at edugan@SBAGreaterNE.org or by calling 888-479-1900

Please indicate number of adults, number and ages of children, name of person with SB and which location you will be attending.

Parties will include:
*Brunch or Lunch (depending on time of day)
*Fun and Games for All Ages
*Special Holiday Guest (with a gift for all children attending)
*Holiday Sing- A- Long


Falmouth Race run but donations still being accepted!


The Falmouth Road Race has been run and was a great success! Thank you!

If you didn’t get a chance to sponsor a runner, there’s still time. Click the button below to donate today!

Walk-N-Roll 2014

walk-n-roll-logo_resizedThe 2014 Walk-N-Roll is over but there’s still time to donate!

Support a team now! Visit walknrollsbagreaterne.org.








Falmouth Road Race Info!

The 42nd Annual Falmouth Road Race has been run but donations are still being accepted. Support your favorite runner and SBAGNE today!

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Donate Today!
Join Now

219 East Main St.
Ste 100B
Milford, MA 01757