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Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

A Celebration of the 25th Anniversary of the Americans with Disabilities Act

Re-Broadcast of the U.S. Department of Justice, Equal Employment Opportunity Commission, and Access Board ADA Anniversary Event July 23, 2015 from the Great Hall in the Robert F. Kennedy Justice Building in Washington, DC Click on this post to ...

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The Most Severe Type of Spina Bifida

Check out: http://www.whatdoyoudodear.com/the-most-severe-type-of-spina-bifida/

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UMass Medical School joins celebrations marking the Americans with Disabilities Act’s 25th anniversary

Check out: http://commed.umassmed.edu/news/2015/07/16/umass-medical-school-joins-celebrations-marking-americans-disabilities-act%E2%80%99s-25th-an#.VbEBfFSq8AQ.email

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Google Paints Stunning Portraits of Disability Rights Heroes on Washington, D.C., Steps 25th anniversary of ADA

Check out: http://www.adweek.com/adfreak/google-paints-stunning-portraits-disability-rights-heroes-washington-dc-steps-166157

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2015 Waypoint Adventure Outdoor Rock Climbing - October 17, 2015

One of SBAGNE's most popular events! Join us on Saturday, October 17, 2015 at the Quincy Quarries in Quincy, MA. For more information, download the information sheet BELOW and register today!  

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4th Annual BEST Weekend - Oct 16-18, 2015

Boston-Children’s Hospital, Myelo Clinic and SBAGreaterNE For the 4th Annual BEST Weekend BEST (Boys, Success, Esteem, and Training) Weekend will include two night stay at the hotel, educational seminars about healthy living, nutrition and athletics. When: Friday, October ...

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Team SBAGNE Getting Ready to Run 43rd Annual Falmouth Road Race! – Aug 16, 2015

Team SBAGNE Getting Ready to Run 43rd Annual Falmouth Road Race! - Aug 16, 2015

42nd Annual Falmouth Road RaceNew Date, Sunday, August 16, 2015 Are you interested in running in one of the premier road races in New England. Run in the FRR and support SBAGNE at the same time.  ...

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Thank you to the MassMutual Financial Group!

The MassMutual Financial Group has made a grant to SBAGNE as the result of the efforts of Ashley Robinson, a MassMutual employee and SBAGNE Board Member who applied for the grant and vounteers with SBAGNE. ...

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TEDx Talk - Separating Children with Disabilities Hurts

Educator Torrie Dunlap presents a beautiful talk explaining why the segregation of children with disabilities, through "special" classes and events is harmful to children with disabilities.  "We have moved from hiding and institutionalizing children to ...

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IF's submission on the rights of adolescents

In consultation with the members and experts, the International Federation for Spina Bifida and Hydrocephalus made a submission to the UN Committee on the Rights of the Child in view of its ongoing work to ...

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Spina Bifida Collaborative Care Network

Dear Friends,As promised we are sharing the results of the focus groups that were held at our 2014 national conference with conference participants before we release them to the public.We thank you for your participation ...

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Spina bifida patient finishes med school in hopes of helping children with disabilities

Born with a birth defect, Sarah Bauer, of Buffalo Grove, made countless childhood visits to the spina bifida clinic in Chicago for checkups. She'd fidget in the waiting room filled with kids in wheelchairs, then undergo ...

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Accessible Seas II Cruise

Royal Carribean Oasis of the Seas round-trip from Ft. Lauderdale, Florida to Labadee, Falmouth (Jamaica) and Cozumel. September 26 - Oct 3, 2015. Open to all with physical disabilities including amputees, spina bifida, cerebral palsy, all ...

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Power wheelchair comparisons

In the market for a power wheelchair? Here's the first thing you need to know: one size does not fit all. There are lots of choices to make in order to get the right chair ...

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Card that explains sepsis could save your life

In order to help you be as aware as possible about sepsis, and to help your doctor to understand your susceptibility to the condition, the Christopher & Dana Reeve Paralysis Resource Center (PRC) has developed ...

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Wheelchair Ballroom Dancer Elaina

This is such an inspirational story of a young girls journey to become a wheelchair ballroom dancer! It is worth watching!

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Spina Bifida Health Care Program

The Department of Veterans Affairs (VA) Spina Bifida Health Care Benefits Program covers most health care services and supplies that are medically or psychologically necessary. The VA can also reimburse expenses for travel to and ...

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The 10 Best Social Sites for Friends with Spina Bifida

If you have Spina Bifida, or love someone who does, we hope you’ll enjoy this list of the 10 Best Social Sites for Friends With Spina Bifida, courtesy of SaveMyMedicalSupplies.org.

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Team IMPACT unites local kids and colleges

Fifteen-year-old Marianne Mahoney is something of a secret weapon for the Northeastern University women’s ice hockey team. The Newton teen has the congenital disorder spina bifida, and is in a wheelchair, and she’s ever present at ...

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Annual Empowerment Benefits - 2015

The 2015 SBAGNE Annual Empowerment Benefit Program has returned! Please visit the Annual Empowerment Benefits Page for the Official Posting and Application.

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4th Annual BEST Weekend – Oct 16-18, 2015

BEST Logo

Boston-Children’s Hospital, Myelo Clinic and SBAGreaterNE

For the 4th Annual BEST Weekend

BEST (Boys, Success, Esteem, and Training) Weekend will include two night stay at the hotel, educational seminars about healthy living, nutrition and athletics.

When: Friday, October 16th – Sunday, October 18th

Where: Homewood Suites, Canton, MA; All Activities will be held at Mass Hospital School, Canton

Who: 10 Boys (ages 12-17) living with Spina Bifida and one parent

(Space is limited to 15 boys and a parent. A waiting list will be available)

Cost: $25.00 per parent/son ($15 covers both parent and son)

Register and pay below or if you intend to register on-site

RSVP: By October 9, 2015 to Ellen at edugan@SBAGreaterNE.org or 888-479-1900

Supported by a Grant from the

Putnam Foundation

Click here to register

 

2015 Walk-N-Roll for Spina Bifida


Walk N ROLL logo -- NEW!-small JPGRegistration is now open!

Gather your friends, family and coworkers, and join us for the

6th Annual Walk-N-Roll for Spina Bifida!

Benefiting the Spina Bifida Association of Greater New England

The Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida and celebrate the accomplishments of the over 180,000 Americans living with it . All proceeds are used for programs and services for people living with Spina Bifida.

The Spina Bifida Association of Greater New England (SBAGNE) is an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. This year we’ll have four locations (on different dates) where you can walk (two virtual): Massachusetts Hospital School in Canton, MA, Rock Church in Scarborough, ME, and locations in New Hampshire and Western MA. When you sign up, you can pick the location you’ll walk at.

Please visit one of the following sites to form a team or make a pledge today!

Massachusetts Hospital School, Canton, Massachusetts – June 6, 2015

Rock Church, Scarborough, Maine – June 20, 2015

Frank Newhall Look Park, Northhampton, MA – Virtual Walk – September 12, 2015

Nashua, New Hampshire – Virtual Walk – October 3, 2015

Thank you to our Year-Long Gold Sponsor Pediatric Associates of Lewiston!

PediatricAssociatesLewiston_Maine_Logo

 

 

 

 

 

 

 

 

Annual Empowerment Benefits – 2015

The 2015 SBAGNE Annual Empowerment Benefit Program has returned! Please visit the Annual Empowerment Benefits Page for the Official Posting and Application.


Surveys

SBAGNE is conducting a series of surveys. Please visit the links below if you are interested in participating. Thanks.
Adults Living with Spina Bifida
Survey of Children with SB
Professional Survey

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Outdoor Rock Climbing - Oct 17th

Donate Today!
Join Now

SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900