Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.

Registration open for the New England Spina Bifida Conference! Click here or on link below.    Falmouth Road Race has been run but donations are still being accepted! Thank you to all who participated and sponsored a runner!

Latest News

Power wheelchair comparisons

In the market for a power wheelchair? Here's the first thing you need to know: one size does not fit all. There are lots of choices to make in order to get the right chair ...

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Card that explains sepsis could save your life

In order to help you be as aware as possible about sepsis, and to help your doctor to understand your susceptibility to the condition, the Christopher & Dana Reeve Paralysis Resource Center (PRC) has developed ...

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Wheelchair Ballroom Dancer Elaina

This is such an inspirational story of a young girls journey to become a wheelchair ballroom dancer! It is worth watching!

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Sled hockey players love their game

On selected Saturdays throughout the summer, the rink at Ristuccia Arena in Wilmington showcases a very different form of ice hockey, one that is growing quickly. The players come in various shapes and sizes. They ...

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EPCI LGBTQ Group for Youth with Disabilities

EPIC is starting an LGBTQ Youth Group specifically for youth with disabilities. This will be a youth-lead, adult-supported group to ensure that LGBTQ youth with disabilities have the opportunity to receive support, education and advocacy ...

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Cinemability: Jenni Takes on Hollywood

A feature length film that is arguably the most comprehensive, up-to-date documentary account of the portrayal of people with disabilities. Read the article now!

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New England Spina Bifida Conference

Mark your calendars! Saturday, September 13, 2014 at the Radisson Hotel in Nashua, NH. Registration is now open!  This is a conference for Families, Individuals, Health Care Professionals and Educators. Friday Evening Social New topics and presenters Kid's Camp Exhibition ...

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Spina Bifida Health Care Program

The Department of Veterans Affairs (VA) Spina Bifida Health Care Benefits Program covers most health care services and supplies that are medically or psychologically necessary. The VA can also reimburse expenses for travel to and ...

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Summer Activities Abound!

There are all kinds of summer activities out there! Check out a these: Adaptive Water and Outdoor Fun in State Parks Accessible Pools, Beaches and Floating Wheelchairs in Massachusetts Spaulding Adaptive Sports - All Summer Long! Americans with Disabilities ...

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Videos from IF's 25th International Conference on Spina Bifida and Hydrocephalus GENErating Changes in Buenos Aires, Argentina

Opening ceremony, lectures and speeches can be viewed through IF's YouTube channel: http://www.youtube.com/user/IFglobalorg

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Adaptive Sports and Recreation Program

The New England Wheelchair Athletic Association is a volunteer organization that helps individuals with physical disabilities participate in recreational and sports activities. The NEWAA provides opportunities for athletic competition by sponsoring regional and local meets. ...

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The 10 Best Social Sites for Friends with Spina Bifida

If you have Spina Bifida, or love someone who does, we hope you’ll enjoy this list of the 10 Best Social Sites for Friends With Spina Bifida, courtesy of SaveMyMedicalSupplies.org.

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Tatyana McFadden Wins Boston Marathon Women's Wheelchair Race

McFadden, an American and member of Team MR8 won with an unofficial time Of 1:35:05!

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Spina Bifida and Hydrocephalus Support Needed in Pakistan

Read more about the support needed in Pakistan for SB and Hydrocephalus.

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Thank you DCU for Kids

THANK YOU to Digital Federal Credit Union  - DCU for Kids For their recent grant to support the “Get Active “ Initiative Watch this site for upcoming adaptive recreation and sports events to be scheduled this summer!

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2014 NE SB Conference Registration Now Open!

Registration for the Annual NE SB Conference NOW OPEN!

Register now now for the 2014 New England Spina Bifida Conference! This is a conference for families, individuals, health care professionals and educations. Mark your calendars for  Saturday, September 13, 2014. The conference is being held at the Radisson Hotel, Nashua, NH and is hosted by SBAGNE. A stipend is available for SBAGNE constituents in MA, ME, NH and VT residents ONLY of up to $250 per individual or family.

Click here to register today!

Falmouth Race run but donations still being accepted!


The Falmouth Road Race has been run and was a great success! Thank you!

If you didn’t get a chance to sponsor a runner, there’s still time. Click the button below to donate today!

Walk-N-Roll 2014

walk-n-roll-logo_resizedThe 2014 Walk-N-Roll is over but there’s still time to donate!

Support a team now! Visit walknrollsbagreaterne.org.








Falmouth Road Race Info!

The 42nd Annual Falmouth Road Race has been run but donations are still being accepted. Support your favorite runner and SBAGNE today!

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Donate Today!
Join Now

219 East Main St.
Ste 100B
Milford, MA 01757