Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.

Latest News

Transitioning from pediatric to adult care: Insights and more

Meet some caregivers of the future: an aspiring nurse, a hopeful child life specialist and an ambitious doctor-to-be. They are all long-term patients of Boston Children’s Hospital, members of the Boston Children’s Read More

Five Steps for Raising a Child with a Disability

A series of articles featuring a series of corresponding blog posts from parents of children with disability. Check out the series.


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Fueling for Physical Activity

Whether you are competing on a sports team or are headed out for some personal exercise, proper nutrition and hydration are vital for performance and recovery. Check out http://www.nchpad.org/1461/6386/Fueling~f

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UVM Spina Bifida Collaborative Care Program (SBCCP)

UVM Medical Center in Burlington, Vermont is excited to announce their Family Centered, Multidisciplinary Spina Bifida Collaborative Care Program (SBCCP) is up and running. Starting in September 2015, this monthly clinic offers pediatric services in Nephrology, Urology, Neurosurgery, Psychiatry, Ort

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PYD to Host the 2016 Youth Leadership Forum

Back in the early 2000s, PYD’s executive director Regina Snowden was the driving force behind bringing the Youth Leadership Forum (YLF) to Massachusetts for the first time. That first YLF was a huge success with over 30

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Volunteer Opportunities at SBAGNE

SBAGNE is always looking for volunteers! Please check out the opportunities that we have available! Visit the Volunteer Opportunity page for more information and volunteer today!

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PUSH! Global Alliance - A better life. For everyone.

PUSH! Global Alliance is a platform for organisations to advance the greatest benefit to those affected by spina bifida and hydrocephalus. Learn more PUSH! Global Alliance.

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Falmouth Road Race 2016 - Get Ready!

Sunday - August 21, 2016

SBAGNE is once again fortunate to receive 11 entries for the Numbers for Non-Profits Program through the Falmouth Road Race. Team SBAGNE participants raise funds an

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SBAGreaterNE wants you to go to the SBA Conference this June!

Funds Available:  Scholarships of $1200 each are awarded.

The SBA Conference is the biggest event of the year and you can be a part of it.

Apply if you want to………………..

Meet other people living with Spina Bifida;
Learn more about living with

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Making My Way Through College

Making My Way through College is a guide for any student pursuing a degree or other type of credential (e.g., certification, license) at a two-year or four-year community college, college, or university. You will find information on a variety of topics relevant to preparing for and succeeding in col

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2016 Walk-N-Roll for Spina Bifida

Gather your friends, family and coworkers, and join us for the

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Power wheelchair comparisons

In the market for a power wheelchair? Here's the first thing you need to know: one size does not fit all. There are lots of choices to make in order to get the right chair for you -- one that maximizes your mobility and independence, meets your everyday needs and suits your lifestyle. Read More

Card that explains sepsis could save your life

In order to help you be as aware as possible about sepsis, and to help your doctor to understand your susceptibility to the condition, the Christopher & Dana Reeve Paralysis Resource Center (PRC) has developed a way to draw immediate attention to sepsis, should they need the information in an ur

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Wheelchair Ballroom Dancer Elaina

This is such an inspirational story of a young girls journey to become a wheelchair ballroom dancer!
It is worth watching!

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Spina Bifida Health Care Program

The Department of Veterans Affairs (VA) Spina Bifida Health Care Benefits Program covers most health care services and supplies that are medically or psychologically necessary. The VA can also reimburse expenses for travel to and from your doctor or health care facility. Some services require specif

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The 10 Best Social Sites for Friends with Spina Bifida

If you have Spina Bifida, or love someone who does, we hope you’ll enjoy this list of the 10 Best Social Sites for Friends With Spina Bifida, courtesy of SaveMyMedicalSupplies.org.

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2016 Education Days

2016 SBAGNE Education Days

We are sorry to announce that both the Western Massachusetts and Maine Education Days have been cancelled. If you have any questions, please contact Ellen Dugan at edugan@SBAGreaterNE.org.

Falmouth Road Race 2016 – Get Ready!


Sunday – August 21, 2016

SBAGNE is once again fortunate to receive 11 entries for the Numbers for Non-Profits Program through the Falmouth Road Race. Team SBAGNE participants raise funds and awareness for SBA of Greater New England. In 2015 Team SBAGNE raised over $40,000 to support programs and services. In 2016 we hope to raise $45,000 more. Minimum fundraising amount is $750. Are you a runner or do you know someone who would like to participate in the Falmouth Road Race and support SBAGNE? Interested Jeff at jvendetti@SBAGreaterNE.org or Falmouth Road Race – Register today online.

Put your running shoes on, start training now!

2016 Walk-N-Roll for Spina Bifida

Gather your friends, family and coworkers, and join us for the

7th Annual Walk-N-Roll for Spina Bifida!

Benefiting the Spina Bifida Association of Greater New England

The Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida and celebrate the accomplishments of the over 180,000 Americans living with it . All proceeds are used for programs and services for people living with Spina Bifida.

The Spina Bifida Association of Greater New England (SBAGNE) is an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. Join us at the Massachusetts Hospital School in Canton, MA.

Form a team or make a pledge today!

Massachusetts Hospital School, Canton, Massachusetts – Saturday, June 4, 2016

Become a SBA of Greater New England Superstar!

Can you raise $500 or more? If you answered yes, you can be a Walk N Roll Superstar!! Our special Superstar program recognizes and honors people who go above and beyond by donating or raising $500 or more for the Walk N Roll.  As a Walk Superstar, you will receive recognition in the SBAGNE newsletter, SBAGNE social media and special star signage on the walk route. Superstars lead the way for the SBAGNE to expand our initiatives and services for individuals living with Spina Bifida, their families and supporters.


Research Studies

MedStar National Rehabilitation Hospital has developed a questionnaire that will help you track your urinary symptoms and assist you with deciding when you need to start treatment. You are invited to participate in testing the questionnaire if the following apply to you:

1. You have a neurogenic/neuropathic bladder and use intermittent catheterization for bladder management.

2. You have a spinal cord injury or spina bifida and are over 18 years of age OR you are the parent or caregiver of a person with spina bifida.

If you meet these criteria and are interested in participating in our survey, please follow this link: http://www.iwellnessforlife.org/survey/.

For questions, please contact:

Inger Ljungberg, MPH
E-mail: inger.h.ljungberg@medstar.net
Phone: (202) 877-1694

Additional Opportunities Here

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Watch for new opportunities in 2016!
Donate Today!
Join Now

219 East Main St.
Ste 100B
Milford, MA 01757