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Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

2015 Walk-N-Roll for Spina Bifida

Registration is now open! Gather your friends, family and coworkers, and join us for the 6th Annual Walk-N-Roll for Spina Bifida! Benefiting the Spina Bifida Association of Greater New England The Walk-N-Roll for Spina Bifida is a family-friendly, walk event ...

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Spina Bifida Collaborative Care Network

Dear Friends,As promised we are sharing the results of the focus groups that were held at our 2014 national conference with conference participants before we release them to the public.We thank you for your participation ...

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2015 Miss Amazing Celebration

Miss Amazing Inc. is a national non-profit 501c (3) celebration for girls and women with disabilities in over 30 states. The organization aims to build the self-confidence of those with disabilities in a safe and ...

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Spina bifida patient finishes med school in hopes of helping children with disabilities

Born with a birth defect, Sarah Bauer, of Buffalo Grove, made countless childhood visits to the spina bifida clinic in Chicago for checkups. She'd fidget in the waiting room filled with kids in wheelchairs, then undergo ...

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World Birth Defects Day Approaching

A network of 12 leading global health organizations announces the first annual World Birth Defects Day, to be observed March 3, 2015. The purpose of this observance is to raise awareness about the occurrence of ...

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Famous People with Spina Bifida

There is no single cause of spina bifida nor any known way to prevent it entirely. However, dietary supplementation with folic acid has been shown to be helpful in preventing spina bifida. Read more about ...

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Accessible Seas II Cruise

Royal Carribean Oasis of the Seas round-trip from Ft. Lauderdale, Florida to Labadee, Falmouth (Jamaica) and Cozumel. September 26 - Oct 3, 2015. Open to all with physical disabilities including amputees, spina bifida, cerebral palsy, all ...

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The Bigger Picture on Disability Policies

Our grassroots action network UsersFirst is the frontline eyes and ears when it comes to our advocacy efforts. UsersFirst Manager Jenn Wolff shares her perspective on disability policies that are worth fighting for and what we hope ...

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Power wheelchair comparisons

In the market for a power wheelchair? Here's the first thing you need to know: one size does not fit all. There are lots of choices to make in order to get the right chair ...

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Card that explains sepsis could save your life

In order to help you be as aware as possible about sepsis, and to help your doctor to understand your susceptibility to the condition, the Christopher & Dana Reeve Paralysis Resource Center (PRC) has developed ...

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Wheelchair Ballroom Dancer Elaina

This is such an inspirational story of a young girls journey to become a wheelchair ballroom dancer! It is worth watching!

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Spina Bifida Health Care Program

The Department of Veterans Affairs (VA) Spina Bifida Health Care Benefits Program covers most health care services and supplies that are medically or psychologically necessary. The VA can also reimburse expenses for travel to and ...

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The 10 Best Social Sites for Friends with Spina Bifida

If you have Spina Bifida, or love someone who does, we hope you’ll enjoy this list of the 10 Best Social Sites for Friends With Spina Bifida, courtesy of SaveMyMedicalSupplies.org.

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BLIN'G Weekend

BLIN’G WEEKEND in collaboration with Boston Children’s Hospital BLIN’G weekend is for girls ages 12-17, living with Spina Bifida and a parent. Limited to 15 Girls and their parent. A waiting list will be available. The weekend ...

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4th Annual BEST Weekend

JOIN Boston-Children’s Hospital, Myelo Clinic and SBAGreaterNE  For the 4th Annual BEST Weekend BEST (Boys, Success, Esteem, and Training) Weekend will include two night stay at the hotel, educational seminars about healthy living, nutrition and athletics.  When: April 24-April 26  Where: ...

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Travel by Wheelchair

Check out the new Blog! Travel by Wheelchair is not just travel info but also includes general interest pieces to the physically-challenged population, whether they be slow-walkers or in wheelchairs. Visit www.travelbywheelchair.com today!

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Team IMPACT unites local kids and colleges

Fifteen-year-old Marianne Mahoney is something of a secret weapon for the Northeastern University women’s ice hockey team. The Newton teen has the congenital disorder spina bifida, and is in a wheelchair, and she’s ever present at ...

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Annual Benefits Program Update

The SBAGNE Board is pleased to announce that Annual Financial Benefit Program is available for 2014 for Qualified Applicants. Applications are currently being accepted. Please visit the Benefits Page for applications and more information.

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2015 Walk-N-Roll for Spina Bifida

walk-n-roll-logo_resizedRegistration is now open!

Gather your friends, family and coworkers, and join us for the

6th Annual Walk-N-Roll for Spina Bifida!

Benefiting the Spina Bifida Association of Greater New England

The Walk-N-Roll for Spina Bifida is a family-friendly, walk event being held in various locations across the country to raise awareness about Spina Bifida and celebrate the accomplishments of the over 180,000 Americans living with it . All proceeds are used for programs and services for people living with Spina Bifida.

The Spina Bifida Association of Greater New England (SBAGNE) is an organization dedicated to promoting the prevention of Spina Bifida and to enhancing the lives of all affected. This year we’ll have four locations (on diffferent dates) where you can walk: Massachusetts Hospital School in Canton, MA, Rock Church in Scarborough, ME, and locations in New Hampshire and Western MA (stay tuned for more information on these two locations. When you sign up, you can pick the location you’ll walk at.

Please visit on of the following sites to form a team or make a pledge today!

Massachusetts Hospital School, Canton, Massachusetts – June 6, 2015

Rock Church, Scarborough, Maine – June 20, 2015

New Hampshire – October 2014 (site to be determined)

Western Massachusetts – September/October 2015 (site to be determined)

BLIN’G Weekend

BLINGLOGO

BLIN’G WEEKEND

in collaboration with Boston Children’s Hospital

BLIN’G weekend is for girls ages 12-17, living with Spina Bifida and a parent. Limited to 15 Girls and their parent. A waiting list will be available. The weekend consists of education, social and recreational activities. Two nights in an area hotel, meals and activities are included. Cost is $25 per parent/daughter.

BLIN’G (Better Living N’ Girls) Weekend – March 6 – March 8, 2015

If you are interested in participating contact Ellen at 888-479-1900 or at edugan@SBAGreaterNE.org

4th Annual BEST Weekend

BEST Logo

JOIN

Boston-Children’s Hospital, Myelo Clinic and SBAGreaterNE

 For the 4th Annual BEST Weekend

BEST (Boys, Success, Esteem, and Training) Weekend will include two night stay at the hotel, educational seminars about healthy living, nutrition and athletics.

 When: April 24-April 26

 Where: Homewood Suites, Canton, Ma; All Activities will be held at Mass Hospital School, Canton

Who: 10 Boys (ages 12-17) living with Spina Bifida and one parent

(Space is limited to 15 boys and a parent. A waiting list will be available)

Cost: $25.00 per parent/son

RSVP: By April 11, 2013 to Ellen at edugan@SBAGreaterNE.org or 888-479-1900

 Supported by a Grant from the

Putnam Foundation

Annual Benefits – 2015

Due to financial limitations the SBAGNE Annual Benefit Program is currently suspended. Please check back in the spring of 2015 for updated information.



Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Donate Today!
Join Now

SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900