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Welcome to the Spina Bifida Association of Greater New England

We are a 501(c)3 organization working to support people with Spina Bifida as they reach for their goals and pursue a more fulfilling life. SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.



Latest News

Support Inclusiveness, Purchase Accessible Icon Items!

EPIC is a proud collaborator of The Accessible Icon Project (AIP). The AIP utilizes design activism to produce a public signal of inclusiveness and accessibility. Check out accessibleicon.org, to read about the AIP's inception and it's goal to bring accessibility to the forefront of graphic design.   Triangle and EPIC have worked together to ...

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EPIC is recruiting for their team of Service Warriors!

The EPIC Service Warrior team is a group of young leaders with disabilities between the ages of 16-23 who commit to a year of community service and leadership development around the Greater Boston Area. EPIC Service Warriors is a competitive program. Interested youth need to fill out an application, provide ...

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Toy Guide for Differently-Abled Kids

For more than 20 years, Toys"R"Us, Inc. has offered the Toys"R"Us Toy Guide for Differently-Abled Kids, a one-of-a-kind resource that offers toy recommendations based on research from the National Lekotek Center, a nonprofit organization that evaluates all toys in the Guide. For years, the Guide has provided parents and caregivers ...

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#GivingTuesday

  #GivingTuesday is an international day of giving. Everyone, anywhere, can participate! This year, you are invited to be part of the movement by supporting The Spina Bifida Association of Greater New England. Donate to the SBAGNE on November 29th! Donate on #GivingTuesday!

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Holiday Parties are Coming! Register Now!

Join us for the 2016 Holiday Parties! This year there will be two parties: Sunday, December 4, 2016 from 12 PM - 4 PM at the Augusta Elks Lodge, Augusta, Maine and Sunday, December 11, 2016 from 10:30 AM - 2:30 PM at the Boston Newton Marriott in Auburndale, Massachusetts. Online ...

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2016 Annual Appeal Underway

The 2016 SBAGNE Annual Appeal is underway! The need for connection is a basic human need. Connections are vital for our good physical and emotional health. It is only through developing formal and informal social networks that one can build an enduring and mutually beneficial community. Our vision is to build connections and ...

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Why donate to SBAGNE – please watch

Ever wonder why you should donate to SBAGNE? Watch this video and find out why your donation makes a difference.

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My Experience at the National SBA Conference Kids Camp

By Lena Williamson This past summer, SBAGNE gave me a scholarship to attend Kids Camp at the biennial National Spina Bifida Association Conference. This year, it was hosted just outside of Minneapolis, Minnesota (just a short ride away from the Mall of America). In kids camp, I was grouped with other ...

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DIY Fundraising - Guidelines

A DIY event is a fundraising event organized and hosted by you in your community. Want to raise money for SBAGNE? Hold a DIY event. See the guidelines and ideas for your fundraiser.

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Support Enock Glidden climbing El Capitan – October 2016

Support Enock Glidden climbing El Capitan – October 2016

A film about a community of friends, family, mentors and strangers helping a paraplegic climber fulfill a dream of climbing El Capitan. For decades, Yosemite rock climbing has received significant media attention, and in recent years the spotlight has grown exponentially. However, the vast majority of these productions have followed similar ...

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Thanks to the Dunkin Donuts/Baskin Robbins Community Foundation for their support of the Annual Empowerment Program!

SBAGNE has received a generous grant from Dunkin Donuts/Baskin Robbins in support of the Empowerment Program and has made some changes to the program as required by DD/BR. $200 per year maximum SBAGNE can only make payments to providers. Disbursements will not be made to families. Applications will be reviewed ...

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REquipment - Durable Medical Equipment

REquipment is a great way to obtain free, gently-used, durable medical equipment (DME) for use by individuals and families in Greater Boston and Central Massachusetts. You can search the inventory here. The latest news can be read online.

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UVM Spina Bifida Collaborative Care Program (SBCCP)

UVM Medical Center in Burlington, Vermont is excited to announce their Family Centered, Multidisciplinary Spina Bifida Collaborative Care Program (SBCCP) is up and running. Starting in September 2015, this monthly clinic offers pediatric services in Nephrology, Urology, Neurosurgery, Psychiatry, Orthopedics, and Developmental Pediatrics. The clinic was specifically designed with input ...

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Volunteer Opportunities at SBAGNE

SBAGNE is always looking for volunteers! Please check out the opportunities that we have available! Visit the Volunteer Opportunity page for more information and volunteer today!

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The 10 Best Social Sites for Friends with Spina Bifida

If you have Spina Bifida, or love someone who does, we hope you’ll enjoy this list of the 10 Best Social Sites for Friends With Spina Bifida, courtesy of SaveMyMedicalSupplies.org.

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#GivingTuesday

givingtuesdaylogo

 

#GivingTuesday is an international day of giving. Everyone, anywhere, can participate! This year, you are invited to be part of the movement by supporting The Spina Bifida Association of Greater New England. Donate to the SBAGNE on November 29th!

Donate on #GivingTuesday!

Holiday Parties are Coming! Register Now!

Join us for the 2016 Holiday Parties! This year there will be two parties: Sunday, December 4, 2016 from 12 PM – 4 PM at the Augusta Elks Lodge, Augusta, Maine and Sunday, December 11, 2016 from 10:30 AM – 2:30 PM at the Boston Newton Marriott in Auburndale, Massachusetts. Online Registration now available!

2016 Annual Appeal Underway

The 2016 SBAGNE Annual Appeal is underway!

The need for connection is a basic human need. Connections are vital for our good physical and emotional health. It is only through developing formal and informal social networks that one can build an enduring and mutually beneficial community.

Our vision is to build connections and community, break down barriers, and provide education and support individuals as they move toward fulfilling and independent lives. SBAGNE also endeavors to promote access and change within society and responds with programs and services to the needs of people of all ages living with Spina Bifida.

Please be generous and contribute today online. Thank you for your support!

Thank You Team SBAGNE (Falmouth Road Race) and Team Liams’s Lead Outs!

Thank you to 2016 TEAM SBAGNE participants in the  Falmouth Road Race. 18 individuals ran the August 21st race, raising over $33,000 in support of SBAGNE .

Thanks also to TEAM Liam’s Lead Outs. 36 individuals rode or walked in the October 1st Tour de South Shore. Participants raised more than $26,000 to support SBAGNE

SBAGNE could not accomplish all that we do without the commitment of these amazing individuals and terrific athletes. THANK YOU!!!!

2016 Team SBAGNE

2016 Team SBAGNE

Team Liam's Lead Outs

Team Liam’s Lead Outs


Donate Today!
Join Now

Ever wonder why you should donate to SBAGNE? Click on the image above to watch a video and find out how you can make a difference today.

Get Active Now!

SBAGNE and Waypoint Adventure are partnering for our new GET ACTIVE! program

Watch for new opportunities in 2016!

SBAGNE
219 East Main St.
Ste 100B
Milford, MA 01757
888-479-1900